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Sarotchka

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  1. Can you please share the exercises the neurologist gave your son? I would be totally grateful. Sarah
  2. I am not an expert in this by any means, but I also have a 9 year old with tics. I have been a basket case, but through it all, my boy is fine. Here's what I do to calm myself. I ask myself 'is he being affected adversely by the tics? (bullying, self consciousness, distraction) ' So far the answer has been no. 'So what is my role in all this?' To provide for my kid and be strong if he needs me. So far he doesn't need me, so the bigger problem is in me and not him (which is good, because we are capable of changing ourselves if not others). In preparation for school, I wrote his new teach
  3. So we took our nine-year-old to a pediatric neurologist today. She did a thorough neurological exam, asked us background questions, watched a video of our son ticc-ing. After she heard that he's been snorting (like clearing his nose/throat) for over a year and that he is blinking his eyes and moving his mouth, she announced that no further work-up is necessary, she thinks it is Tourettes. I am at a loss for words. I have so many questions right now: 1) Is this diagnosis even possible? I thought he had to have year of vocal and motor tics. (He has snorted for a year and does have
  4. Thank you, Chemar for the kind words. It's so meaningful to know that there are others who get it and want to support each other. Much gratitude. Sarah
  5. Hi . This is my second post. I'm not sure if I should just add to my first thread or start a new one so if this is inappropriate, please let me know. I am having a hard time emotionally with my 9-year old son's tics (facial--a mix of eye widening and mouth circling for about three weeks now). I think in general, they have diminished, but when I see them, my insides are just wrenched and I have a hard time not showing my discomfort/worry. He has no other symptoms--eating, focusing, sleeping, socializing fine. Luckily, we will be seeing a pediatric neurologist next week. Here's what
  6. Thanks for your support. Had the pedi visit today. They gave him a physical, looked at a video I took, took bloods to test for Lyme and referred us to a pediatric neurologist. That appt will be on August first. At least we know that he is in no immediate danger. The pedi encouraged us to continue with our summer plans, so Jake will be spending a week with the grandparents. It will be good for him to have some time just being loved and occupied instead of me stalking him all the time to check his tics!
  7. Thanks so much for your quick and thoughtful reply. We live just north of nyc. Jake has had basic allergy testing and is allergic to dust mites. We try to keep the house, especially his room, dusted, washed and vacuumed regularly. I just ordered a HEPA filter. Summer is such a difficult time to get diet under control. Jake is supposed to go visit his grandparents in two days and it is hard to limit the spoilage, especially since we won't be there. Something interesting is that we are a soda free family except on trips. Jake had a bunch of orange fanta at the beginning of our trip j
  8. About two weeks ago my 9 year old son started exhibiting facial tics. He widens/scrunched his eyes and twists his mouth, generally doing the two actions together. These actions were happening really frequently in a series. We were on vacation in Vietnam with no internet or phone service at the time. By the time I was able to contact his pedi, the tics had deminished considerably. Pedi put him on amoxicillin 400mg x 3 daily. For the first 7 days, all was calmish. The last two days the tics are again exacerbated. We have also been dealing with interrupted routine, extreme heat and humidity
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