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Kyle_Hamam

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  1. Hi Jaco, My name is Kyle and I have the same symptoms you had in 2012. I am 19 and have suffered with PANS, POTS, PI, and possible Lyme, after returning ill from a family vacation to Costa Rica. I have done 3 HD IVIG treatments that have only made me worse especially with my derealization feeling. In Feb I tried 10gm of SCIG which I was able to tolerate a bit better but wasn’t enough to make a difference in my recovery. Recently I completed 10 plasmapheresis treatments with some improvement but got worse again after they tried to give me LD IVIG yesterday. Your post validated how I
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