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supermom13

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Everything posted by supermom13

  1. makes sense. i am trying to detox with epsom salt balts, drinking lots of water and he does go to the bathroom twice a day. the abx did take away all his symptoms so i keep thinking it cant be the vaccine right if abx brought him back. everything happened so quickly, strep, back to back sinus infections and vaccine..
  2. strep in November 2017, 2 month cough from dec 1 to feb 15. a mysterious 2 day throw up in feb and then dtap vaccine in feb as well. march pandas started.
  3. hi everyone, would abx work even if you cannot identify a trigger? my son had so much happen within a 4 month period ( strep, sinus infections, flu, prolonged cough, allergies , vaccine) that i cannot say with any certainty what his trigger is but he is responding to abx. the vaccine was the one that occurred closest to his onset...could abx work on pans triggered by a vaccine?
  4. i heard peeling fingers and feet are a sign of strep
  5. Is that the same as strep? But maybe in nose? My son got strep in november but we treated with antibotics and then in dec had a 6 week cough. When we took him to pedi for the cough they said his ear was red and gave us antibotics. I think they labelled it middle ear infection. The antibotics did nothing and the cough persisted until it stopped on its own and with the help of allergy medicine. march tics started with some anger issues. He seems to get mad quicker. Tics come and go but throat clearing always present. I can control tics somewhat with allergy medicine but the throat clear always there regardless of medicine. Then a few weeks ago my son got a throat infection/croup and was given steriods. Throat clearing stopped with 3 day steriod but came back. Now last week we went to allergist and he commented on my sons throat clearing and checked his ear and said he has fluid in his ear. Told me he didnt want to give me antibotics but suggested salt water gargle and going to ENT. I looked up fluid in ear and came up with serous otitis media. I read 40 percent of time fluid in ear is this streptococcus pneumoniaebacteria. I tested my son ASO a few weeks ago but it was less than 20. Any input is appreciated.
  6. I keep reading about essential oils. Do you apply the oils on your son?
  7. Been on zytrec but we lessening dose in order to calm his behavior but doesn't have same effect on tics.
  8. My son started ticcing march 25th, My son been on zytrec for a few months and really does help calm his tics by 90 percent but his behavior was getting alittle roudy so we switched to Clartin. Weridest thing with clartin his tics are horrible. Any reason why that is? Isnt zytrec and claritin the same? And why does my son stop ticcing on allergy medicine anyway? Are his tics allergy related. My nuerologist said not related.
  9. I meant to write mask all the tics.
  10. Thats encouraging to hear that your son is so accepting of his condition. When you say the tics are somewhat under control with guaficine would you say there is a 40, 50, 80 percent reduction? I am not at the point i would start medicine but wish there was a medicine that masked all the to s, i know i know wishful thinking
  11. Sorry you are going through a hard time. Were you able to get an appt with a pans/panda doctor? When my son started with tics 3 months ago as well i started him on magnesium gummies, probotic and omega 3. I also started incorporating epson salt baths. I also suspect something with the allergies because it started right in the start of allergy season.
  12. i have a pandas question, did he have alot of strep/ ear infections close to when the tics started? Do you also treat the autism? i never heard of Mitochondrial Deficiency, what are the symptoms?
  13. Shelly76, your son had just blinking for 4 years right? that was his transient tic? Is he diagnosed with anything else, adhd, anxiety, ocd etc?
  14. my son didnt either in front of neurologist until i have him my iphone and then he did.
  15. yes i am using the natural calm gummies, before the gummies i used the powder in his juice. but in order to cut down his juice intake i switched to the natural calm gummies. it is like a guessing game right? hate that there are not better options for these kids.
  16. Hi Shellyby76, Do not worry about the outburst, we all feel your pain. that is why we are here. when i first used natural calm magnesium i did the powder. but then my son loves gummies so i switched to the gummies. My son was obsessed with the screen especially his ipad but my son is younger and easier to adapt i guess. now i noticed he prefers to play more than screen time but i bet if i gave him more screen time he would not object. i also tried magnesium roll on but it burned his back so i discontinued. high quality Epson salt, i never thought of that, what brand do you use?
  17. i am sorry your son is suffering. i am new to all this as my son is only 5. only things we implemented is magnesium gummies , smarty pants vitamins with fish oil, cleaned up the diet, no processed food as possible, removed artificial flavors and colors and really cut down on screen time to less than 2 hrs a day. i see alot of people on here cut out diary and gluten. is your son sleeping a good amount at night?
  18. When you mean bottom was red? Do you mean whole bottom or just like when a baby gets a diaper rash a certain section is red?
  19. Please keep us updated on what your doctor suggests. I also have a 5 year old son with tics since march 25th. He ticced pretty consistely for 4 weeks and it has seemes to stopped with a few throat clearing throughout the day. He has really bad seasonal allergies. Pollen during the spring and i believe dust in the winter. It is so hard to wait and see since all we want to do is help our children.
  20. Thank you for the response. What did you mean by, “ your son's young age is likely a good sign that his condition is not chronic.” sorry so new to all of this.
  21. It has been 2 months since my 5 year old son started having facial tics along with throat clearing. His facial tics started March 25th at 7pm. I was with him all day and then at 7pm he was watching his ipad and boom it started. the facial tics included: facial grimacing, eye blinking, eye widening, nose scrunching, a bunch in his face. A throat clearing tic surfaced a few days later. Those tics happened 95% of time when watching tv and or ipad. the other 5 % was when he seemed relaxed, in the car and reading a book. The facial tics lasted about 3.5 weeks after a bad stomach virus and he threw up 10 times, the facial tics for the most part went away. ( i occasionally see a eye dart or a eye brow widening, but very rare) He still has the throat clearing tic that happens mostly when playing or running around. Sometimes when he gets upset or excited he does a teeth grinding thing. I feel the teeth grinding thing he does purposefully only cause when i ask him why he is doing the teeth grinding thing he can stop it. Or he tells me his teeth are itchy. he tested positive for strep throat culture back in November, 4.5 months before the tics started. we think he got strep Nov 4th but didn't know until Nov 7th/8th when he threw up and had separation anxiety going to school. We took him to the doctor and he tested positive for strep. I feel horrible that he went 4 days we think with strep before we knew. the strep was cleared with a 10 day dose of Amoxicillin, then December 1st he developed a night time only cough for about 6 weeks, was put back on antibiotics this time Augmentin for 10 days even though he tested negative for strep but they think he might of had a ear infection because his ear looked a little infected the antibiotics did not work for the cough so back to the doctor and he was then put on Flonase and the cough stopped. we had to stop the Flonase as it made his nose bleed but once we started the zytrec the cough stopped completely. He is still on zytrec because his seasonal allergies are just horrible but he still throat clears when playing. My question is can you develop strep related tics 4 months after the strep test was positive. He has been swapped 2 extra times for strep and they came back negative. My pediatrician and neurologist both said if it was strep related tics and or pandas he would be acting different and that those tics usually start soon after the infection and not 4.5 months later. So for now he is diagnosed with transient. he is a very happy outgoing kid but sometimes gets angry if something doesn't go his way ( for example his brother taking his toys etc). he seems irritable in the morning as well ( not sure if that is due to zytrec) but i know that could be 5 year old behavior.
  22. Well i am the same way overly concerned. I think i pretty much googled every thing i can. Which is bad for me. My sons tics started 2 months ago with blinking, grimmacing and a few others. Those seemed to fade and now we has a throat clearing one. He also has allergies and he is on zytrec so i am not sure if thet is helping with his tics. Diet and vitamins are key. Is your son sleeping enough, taking vitamins like magnesium, fish oil etc and maybe clean up his diet?
  23. It could be a transient tic that could last a few months. Is that what your doctor said? My son is having motor tics at the moment so i am trying to clean up his diet, less screen time, magnesium gummies etc...
  24. i have a question with waxing and waning. If you are in a waning period does that mean not one tic at all?? i just noticed that my sons tics went from bouts all day long to maybe 1 or 2 tics throughout day and nothing repetitive. like if he does a eye widening it is literally one eye widening.
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