guy123
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Posts posted by guy123
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I tried searching but I couldn't search for "Vitamin D" because "D" was too short of a word.
If you have noticed an effect from pill form of Vitamin D, do you also notice the same effect from being out in the sun?
Thanks.
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You may not be the only person to experience this. If you go to Google and type in "Miralax tic" you will notice that it is a suggestion in the drop down box, which means enough people have already searched for it that Google thinks it may be what you want to search for.
You may want to look at some of the search results.
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There is some good advice on this forum about ways to find your triggers (certain foods, etc.) which can be useful. For example, some people are sensitive to MSG. Other people are sensitive to chlorine in the pool, etc.
There are also some supplements and natural treatments listed that have helped some people (vitamin B, taurine, magnesium, etc.). Keep in mind some supplements also make other people worse. Since everyone's chemistry is a little different, there's no one-size-fits-all answer.
If you choose to go the prescription medication route, here is some information to bring you up to speed. It's a list of all known prescription medications that have been used to treat tics. Study this or print it out and bring it with you to the doctor to make sure he doesn't start you on some super strong medicine with powerful side-effects (such as Haldol).
http://www.tourettestreatment.com/list-of-treatments.php
Generally speaking, for most people, the prescription medications with the least severe side-effects are:
- Clonidine
- Tenex
- Topamax
- Marinol (prescription, pill form of marijuana)
- Marijuana
While some people have adverse reactions to those (for example, Clonidine causes rage in some people), on the whole they tend to be less severe than drugs in the neuroleptic class for example, whose side effects include permanent movement disorders and sudden death.
Whether with supplements or medications, always start with a very small dose, smaller than what you think you need. And discuss this with your doctor.
Do tons of research on everything before you do anything.
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Relating to tics?
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Trying 2/3 of a pill today. Heh, increasing slowly.
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Did the DMAE have any effect on tics?
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Not as a specific treatment for tics, but I'm curious if anyone who has tics/TS has used them and if there were any noticeable effects on tic severity.
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Trying 1/2 taurine pill (250mg) today.
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I got some 500mg Taurine pills from GNC. I just took about 1/3 of a pill, which is around 166mg. If I don't notice any increase in tics then I will try half a pill tomorrow, and if no increase, then a whole pill on Wednesday.
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How does this test work? Blood test?
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yes, that excellent thread from mrsD on NeuroTalk about Magnesium is one I have linked here a number of times
The mag lactate is supposed to be the very best absorbed but I have not been able to find it
It's expensive.
http://www.vitaminscripts.com/standard-process-magnesium-lactate-90-capsules.aspx
http://pureformulas.com/magnesium-lactate-90-capsules-by-standard-process.html?CAWELAID=532167358
A little cheaper on amazon:
Do you think my idea of trying taurine alone first to judge sensitivity is a good idea? Or would the taurine in pill form be different from that in magnesium taurate?
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Thanks.
Perhaps I will start with taurine alone and see if there is an adverse reaction, and if not, I will try some magnesium taurate. And if so, then I will try some magnesium alone.
I can get 500mg taurine pills at GNC for like $6. I think I'll start with like 1/2 a pill and see what happens. If no adverse reaction, take a full pill. If no adverse reaction, I will assume that I can take it safely.
Here is the rest of the ingredients:
Other Ingredients: Di-Calcium Phosphate, Cellulose No Sugar, No Starch, No Artificial Color, No Artificial Flavors, No Preservatives, Sodium Free, No Wheat, No Gluten, No Corn, No Soy, No Dairy, Yeast Free
So none of those should have any adverse effect, right?
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Here is some useful info:
Magnesium
Chelated:
- alpha-ketogluconate
- aspartate
- glycinate
- lysinate
- orotate
- taurate
Magnesium
Inorganic or ionic
- sulphate
- oxide
- citrate
- carbonate
- bicarbonate
- chloride
"Some supplement companies make so-called chelated magnesiums but the chelate (bound to) is partial and the raw material contains some percentage of ionized, unbound or inorganic magnesium. Ionized magnesium may cause diarrhea in many users and, therefore, not correct a cellular magnesium deficiency. Diarrhea, or soft stools, caused by any form of magnesium can make a magnesium deficiency worse. "
Source: http://www.krispin.com/magnes.html#How
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More good info (looks like Chemar is a member of this forum, too
)http://neurotalk.psychcentral.com/showthread.php?t=1138
There are two types of magnesium supplement...1)inorganic salts
2)organic chelates.
Inorganic salts include epsom salts (magnesium sulfate), magnesium chloride
as found in delayed release forms SlowMag, and its generic equivs MagDelay and Mag64.
And Magnesium Oxide (which time has proven in studies to be next to useless).
The chelates are citrate, lactate, glycinate, malate, taurate..these are the most common. This is magnesium bonded to an amino acid which then allows for better absorption with less stool loosening (a common side effect).
Recent studies have shown that not all magnesium supplements are bioavailable --meaning absorbed well from the GI tract.
Magnesium lactate is the best, most completely absorbed.
Magneisum oxide is the worst, by far, and should be avoided.
The rest provide in intermediate level of success and if you want dual effects, some of the chelates afford those. Magnesium taurate provides taurine, which some Tourette's patients do well on. Taurine is also good for the heart.
Magnesium malate provides malic acid which Fibromyalgia patients often find helpful. Anyone with muscle issues would find this useful.
Magnesium citrate can be very laxative, but some people find this useful if they have chronic constipation.
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Thanks.
I definitely don't want a laxative effect. I have diarrhea occasionally and randomly as it is. This site says magnesium citrate is for short term use (then again, ehow is not the authority it makes itself out to be, so I wouldn't place much faith in this).
http://www.ehow.com/about_5130706_types-magnesium-supplements.html
If I was going to take magnesium by itself, which form would you recommend?
I'm still doing some research on magnesium, taurine, and magnesium taurate.
Is there a reason to take magnesium (in whichever form) + taurine separately, or should I just go with magnesium taurate and call it a day?
Oh, and can these be mixed with Clonidine?
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Ok, thanks. I didn't even know there were that many kinds of magnesium available!
I was reading about them a bit online and it looks like many of them are used laxatives. I definitely don't need that! It seems that the more poorly absorbed it is, the more laxative effect it has. Does that sound right?
I was just at the store (Target) and all they had was Magnesium Oxide.
What about using L-Taurine by itself, or in addition to the mag taurate? What brand of Taurine do you use? Have you noticed tolerance or withdrawal?
And if taurine is so helpful, why are drinks like Red Bull (which contain Taurine) harmful? Does the caffeine override the taurine's benefit?
I am a 160 pound male. What would me suggested dosage of magnesium taurate be? What about magnesium and taurine separately?
Sorry for all the questions!
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I remember this forum seemed to feel magnesium was very beneficial for tics, and there was a specific variety or type or something that everyone used. Can you please refresh my memory as to what it was and where to get it? And dosages, too.
Thanks!
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I have used it recreationally in the past (years ago) and I don't recall it having any effect on tics. That was before I started taking Clonidine, however.
Thinking about using it again, but I just wanted to do a cursory questioning here and see what people's experiences were since I've seen it mentioned here before, and to ask if anyone has any experience using it while on Clonidine.
I know tolerance builds quickly and about the withdrawals and stuff. I'm talking about using it sporadically, once every few months or so, rather than taking it every day.
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My husband had a horrible and long lasting psychotic reaction to clonidine so please don't just accept that it is a "safe" option!!!
ALL of those drugs have the potential to have severe side effects.
Yeah, I didn't mean to imply it was 100% safe, just that, on average, its side effects tend to be less than, say, neuroleptics.
Chemar, what treatment if any did you husband go with after trying Clonidine?
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So you're asking about Klonidine (Clonidine) or Clonazapem (Clonazepam, trade name Klonopin).
Clonidine is a blood pressure medicine that is very similar to Tenex. It has the most mild side-effects of all the medications used for tics.
Clonazepam is a benzodiazepine which is known to have some potentially severe withdrawal effects (google "benzo withdrawal"). Benzos are anti-anxiety medications, and I believe it is the only benzo that is indicated for tics, and seems to have some effect in some instances "...since some of the premonitory sensations resemble obsessions and the tics may be viewed as 'compulsive' movements..."
Here is a list of all known medications that have been used to treat tics, how they work, and notes about whether or not they were successful (most were not):
http://www.tourettestreatment.com/list-of-treatments.php
You will notice that the majority of treatments were either ineffective or carry dangerous side effects. There seem to be only 4 safe choices:
- Clonidine
- Tenex
- Topamax
- Cannabis (either smoked or in the prescription pill form, Marinol)
Of course, every person's chemistry is different and what works for one person may not work for another. Discuss all of this with your doctor and always start with a lower dose rather than a bigger dose because the goal is to find the smallest effective dose.
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Post your experiences.
Thanks.
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Thanks for the reply. I'm gonna do some research on those.
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Mold will also cause: brain fogginess, eye tearing, light sensitivity, asthma, balance issues, headaches, night terrors, frequent urination, numbness and tingling, muscle weakness, multiple chemical sensitivity, chronic fatigue, ADHD, ADD, OCD, memory loss, sinus infections, ear infections, irritable bowl syndrome, etc., etc. Did you also have any of these symptoms? Everyone in my family had these symptoms and more. Much better now that we are living in a clean house.
Cliffs Notes on toxin binding medication? Name? Dosage?
I have light sensitivity (photophobia), I half jokingly say that I have adult onset ADD, I have mild OCD at times, and I have had gastrointestinal issues that were bad enough to seek out gastroenterologist specialists at hospitals and universities, at one point causing me to lose around 25-30 pounds, from a lean 170ish to a skinny, malnurished looking 140.
Is it too late to take these toxin binding medications 13 years after the fact?
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I thought tics affected muscles with voluntary control. How do you voluntarily regurgitate something other than putting your finger down your throat?
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Or those of your children? How much worse, and how long does the effect last for?
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I have some Throat Coat tea, but I just bought another variant that was like Throat Coat Tea + Echinacea, that's why I asked.
)
Vitamin D
in Tourette Syndrome and Tics
Posted
What dosage of oral Vitamin D are you seeing an increase with?
Is the increase temporary for a few hours until the effect wears off and then a return to baseline or does it seem to last longer?