guy123
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Posts posted by guy123
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I came across ratios of between 12:1 and 15:1 of zinc:copper. But it's a hard thing to measure. Vitamin C is a copper chelator, so if you supplement with C, you could be losing copper faster than zinc regardless of the amounts you put into the body. You also have to consider dietary sources. In my case, a genetic tendency to excrete zinc (pyroluria) means I assume some portion of the zinc that goes in comes right back out without being used. So you could argue that you'd need to supplement at an even higher ratio.
You can periodically measure both with a blood test, but blood tests don't accurately reflect the mineral levels within a cell, only what's in the plasma outside the cell. So we use the blood tests as a rough guide but end up supplementing based on symptoms (e.g. when DS throws up after taking copper, I skip for a few days, if he takes it without issue, we stay on schedule). It's far from perfect no matter how you approach it.
But I'd say that if you've been supplementing copper for some time, you should also make sure you're getting adequate zinc. You may want to google "copper personality" to look for signs of high copper effects on mood and behavior.
I've only been taking it for 10 days.
I've taken zinc and vitamin C in the past and never taken copper before so maybe my levels were a little low and that contributed to me getting tendonitis twice in the last year (after never having it in my life despite lifting weights for the last 12 years). Who knows.
I don't think I have that "copper personality," though. I think I will keep taking it until my shoulder tendonitis is gone and then only occasionally supplement with it.
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I am on Clonidine. I have personally found that the Actavis brand has significantly less side effects than the Mylan brand.
This forum focuses mainly on non-prescription treatments but if you are interested in seeing a list of known prescription treatments along with side-effects and some results, please visit this site:
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What's the proper ratio to take zinc/copper in? I heard 10/1. So for example if you take 50mg of zinc you should take 5mg of copper.
That's just an example. I know 50mg is a common dose of Zinc pills but 5mg of copper sounds like a lot to me. I've been taking a single 2mg pill each day.
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I heard nausea can be a sign of copper toxicity. How much is he taking and how much does he weigh?
I take it after lunch.
Zinc on an empty stomach can make you sick. It's all over the first page of Google results, too:
edit - We can't post images here? Ok, click this instead: http://i.imgur.com/nHvsH.gif
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I have recently begun taking copper supplements (2mg day) to help treat shoulder tendonitis which I've had for 8 months now and is about 95% healed.
Has anyone here had any experience with copper supplements regarding tics? I read a few things online suggesting that it might make OCD worse so I'm keeping an eye out for that so to speak.
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Hello Clay
you may want to look into the mouthpieces that are made by dentists for people who have tics caused by TMJ (transmandibular joint) misalignment
We have some past threads here on it
That was what I thought of, too.
I thought the overall consensus is that those weren't very effective. Didn't some members say they got the mouthpieces and they didn't do anything? Maybe I am thinking of something else.
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What sort of effects were you noticing while he was on it?
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Guy, I hope that u get this!!!!! I have EXACTLY what you have! It can be very irritating and uncomfortable! I often have the need to blink hard when my eyes are closed as well. You feel like there's no relief. Two things I have found beneficial is to keep my eyes very CLEAN and very lubricated with drops. A doctor told me years ago that I have a common staff infection in my eyes and to thoroughly wash my lids with baby shampoo. It never goes away, but it helps. Please update me. I don't believe its a tic at all. I am an RN & very familiar with tourettes.
I have a tic. I had an examination by an eye doctor and she said I have slight photophobia and possibly slightly dry eyes, but my blinking is not because of any eye issues. She gave me some eye drops which didn't make any difference one way or the other.
My tic decreases significantly in the doctor's office so I had to bring in a video of me blinking to show her. It's a common occurrence for tics to disappear at the doctor, although no one seems to know why.
I take 0.025mg of Clonidine (1/4 of a 0.1mg pill) nightly and it has reduced my blinking tic. I started the website http://www.tourettestreatment.com to share my treatment research, since there seems to be only a few medications that actually work. It can be hard to find reports of drug trials so I wanted to put everything together in one place where people can easily find it.
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My tics began when I was 17 shortly after using Flonase.
I don't know if that's the cause, and there were other things I was exposed to (such as black mold at my high school which later closed down as a result), but Flonase is a corticosteroid and steroids are known to exacerbate tics, so maybe I was genetically on the borderline and Flonase pushed me over?
I don't know.
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Fish oil had no effect on my tics.
I have to ramp up the dosage slowly, though. The first few days I take fish oil (after a break), I get upset intestines and sometimes diarrhea a few hours after I take it. This goes away after a day or two.
Can you post the ingredients of the one you're taking?
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Preparation H is a corticosteroid. Does it make tics worse?
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Dr. Eugene Yen at NorthShore University Health System.
Dr. Ira Hanan at University of Chicago.
Both are gastroenterologists and both were super cool, patient, and understanding when I saw them. I think there was a waiting list of a few months. They are specialists who are some of the best in the field.
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So in answer to your question, yes, I do think TS is a disorder, inherited genetically.
However, I think TS-like symptoms are frequently misdiagnosed, especially when there is no family history.
I would agree with this.
Tics can be caused by more than one thing, and medical science does not yet have the ability to isolate and treat every possible cause.
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Exchanged the magnesium malate for KAL brand magnesium glycinate.
Ingredients:
Serving Size: 2 tablets
Calories: 10
Total Carbohydrate: 1g
Magnesium (as Magnesium Glycinate): 400mg (100%)
So they're 200mg each.
I don't like this labeling and I don't know if that means 400mg of elemental magnesium or 400 mg of magnesium glycinate.
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Magnesium notes:
Magnesium malate
"the only cost effective form where the other ingredient is actually doing some good and not potentially causing harm (magnesium taurinate also looks interesting as you get the taurine which I also take as a bonus)."
Magnesium aspartate
"potentially neurotoxic"
Magnesium citrate
"laxative"
"appears to augment gastrointestinal aluminum absorption markedly..."
Magnesium oxide
"laxative, poor absorption"
Magnesium glycinate
"Glycine has some odd effects in large doses" (not sure what these "odd effects" are, but this guy was taking another supplement called "TMG plus glycine" and I guess didn't want to get too much)
Magnesium orate (likely a typo of "orotate")
"Probably good just extremely expensive" (KAL brand is like $10, other brands are like $60 per bottle)
May cause cancer?
Magnesium taurate
"both magnesium and taurine have sedative effects, and are neuroprotective."
Some other people say "don't bother with magnesium glycinate unless it's an Albion" which includes Carlson, Bluebonnet, Douglas Labs, Solgar.
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if you feel any reaction like that you really should stop taking it till you have spoken with your doctor about it!
You may not need extra magnesium and it may be throwing off the balance of things eg the calcium
we were always told to supplement 2 parts calcium to every 1 part added magnesium
do talk to your doctor about that fluttering!
The magnesium taurate never gave me any weird effects. The only reason I got another kind was because the taurine was making me relaxed and while it worked well at night, I wanted to try something different during the day. I may try another brand of magnesium malate, or I may try another kind. I have a list of types of magnesium with comments I've seen about them on various forums. I'll post it in the reply after this one.
I drink a lot of milk, do I get enough calcium with that?
What kind of calcium is best? Are there different types like with magnesium?
2 parts calcium to 1 part magnesium, cool.
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I've been having heart palpitations (I think? A weird flutter feeling in my chest every so often) since I started the new magnesium supplement. I'm going to lay off for a few days and see if it goes away.
This is odd, because magnesium is used to treat heart palpitations.
Could be something else. Could be random coincidence. I'm going to stop for a few days and see if it goes away. If it does, I will reintroduce the new magnesium and see if it comes back.
So weird. I stopped the Mag Malate and the heart palpitations stopped.
Started taking it again and they started up again.
It's just a brief "fluttering" feeling in my chest that lasts for a few seconds that I feel once or twice a day, but still, that's weird, and probably not a good thing.
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Was "observation" in the doctors office?
Tics are notorious for disappearing in the doctor's office. No one knows why although it's almost assuredly neurological in nature.
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So pretty much every time I feel that I have noticed an increase in the tics, I should add that to the comments. Maybe at the end of each day put a comment on how I felt throughout the day?
Yeah, and make note of anything noteworthy.
What I did for a while was assign each day (or you can break it into smaller time periods if you want) a number between 1-10 based on tic intensity. Have 1 be almost no tics at all, and 10 be constant ticcing.
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Hey everybody, ive been recently reading the ACN Tourettes book, and I am starting to really get convinced that my tics can possibly be reduced (or disappear) with the correct elimination of certain foods. Now I am having a difficult time figuring out what exactly triggers my tics, and I want to start keeping a detailed log of my tics on a daily basis. I just don't really know where to start and how to log everything. Does anybody have a link to a sample log or possibly an explanation of what to log and how to log everything? Would you guys recommend I find the threads where everybody lists common foods that can be triggers and just eliminate as much as possible?
If it helps im 22 years old, and ive been having decently severe (not as bad as some stories I have read in the book)tics since I was about 7 years of age.
My tics include: Eye blinking, neck stretching, eye rolling, looking over my shoulder (I kinda get stuck in that position for about 10 seconds), discomfort under my arms, discomfort in legs, and the breathing tic.
Might have missed a few, but those are the most common ones.
Thanks everyone
Keep a record of what you eat at what times every day.
Also keep a record of how you are feeling and how intense your tics were on that day.
Some things you may notice an immediate change, other things may take longer. For example, you may notice that when you eat a certain food, your tic gets worse for 3 hours afterward. You may notice that when you haven't eaten something for a few days, your tic improves. You can look for trends over time, like "every time I eat (something) my tic gets worse" or "my tic was better during these days and it looks like I didn't eat (another food) at all during that time," etc.
If you have Microsoft Excel, you can make a log with days across the top and times down the side, like this:
And then you can put comments in each time slot about how you're feeling, etc. You don't have to fill out each one, just if you notice something different that you think is noteworthy.
You can use the tabs at the bottom for each month.
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Now that you mention it, my neurologist also gave me reflex tests, but I think those were unrelated to the tics and are standard procedure for a first visit to the neurologist.
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hello guy
no she meant ProBugs
It is kefir made by Lifeway for kids....I found it on their website
Shows what I know!
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For what it's worth, I was 27 or 28 when I went to the doctor for my tic and I didn't get any tests. I saw my PCP and also a neurologist. They both agreed I had tics and asked me what I wanted to do about it. I said let's try Clonidine (I had done a lot of research on my own beforehand). They said ok.
edit - I forgot, I also went to an immunologist and asked for a strep blood test, which came back negative.
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Fencelatitidue, that was nicely presented information.
1tiredmama, glad Abilify is working for you. Just be aware that it can cause Tardive Dyskinesia.
clinical trial
in Tourette Syndrome and Tics
Posted · Edited by guy123
Are they Botoxing the affected muscles in that study? What happens if you still get the sensation that you need to tic but you are unable to move the muscle because it is paralyzed from the Botulism?