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Bernerchiro

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  1. We saw Thea and she is in North Hanover I believe. I can look up the details and message you. We had blood test done right before but no results were in yet. She did all the testing. It’s all muscle testing stuff, which will likely seem a bit out there to most (just a warning lol). But that’s up my alley already so we planned to follow the diet changes either way. Everything is individualized on supplements and we all went to see her (my wife and I with our son)
  2. Things are still going well. All tics are minimal or gone. Average person wouldn’t notice a thing. Only “problem” is he’s become a bit obsessive with food. He asks for food all day, every day. We are trying to cut back on the amounts he’s getting. Almost like it’s an obsessive thought unless we keep him occupied. It’s hard than it used to be because we give he zero electronics (tv phone iPad etc). He wants attention 24/7 and it requires some parenting changes but all worth it! We have every board game in existence lol
  3. Flu shots cause tics. Might be worth looking into the whistleblower Dr Thompson at the CDC. He suggested starting with tics in a public campaign because the published research had already proved tics were caused by vaccines
  4. It’s been a good week. Very few tics. Blinking nearly gone. Went outside 4 hours today and played a baseball game on top of that. Tics almost zero and no blinking (even with sunglasses it was nonstop blinking and eye rolling 3-4 weeks ago. Some days you’ll see a few arm tics and facial things but the average person could be around him and hour or two and they’d never notice anything (as a parent you see it all). We keep introducing some new foods. He starting eating bone broth soup with lentil pasta and same with chicken noodle soup. Lettuce wraps with steak and rice he likes.
  5. Clearly had our best week yet. We decided to start rotating foods. Last Monday we started with chicken, cabbage, sunflower seeds, squash. Had a good day overall. We also finally found goat butter to cook with. Whole Foods finally had it in stock. Tuesday we tried cashews, carrots, asparagus, chicken. Not terrible but clearly not as good. Leg stuff flared up at target, which is scary relative to everything else. Trips outside the house where there is bright light is definitely a trigger. Causes his feet to get tangled up and fall when everything is flaring bad. Decided to go ba
  6. Trip to Boston postponed due to the weather so we’ll be seeing the nutritionist next weekend instead. He’s trying all sorts of new foods, pretty much wants to try everything and has been constantly hungry (both very new....used to eat less than 10 foods or so). Tried lobster, crab, pear, lentils, steak, chicken, asparagus for the first time. He’s loving the seafood but I’m sure we’ll cut back on that. Eating lots of raw cabbage. Didn’t have organic brussel sprouts so haven’t tried those yet. Thursday seemed like his best day but blinking still pronounced, especially when goin
  7. Now that we’ve been Salicylate free for just under a week a new pattern seems to be emerging. Sugar. I suspect an underlying yeast infection and hopefully we’ll find that out soon. Clearly craving sugar. His 2 worst periods (aside from the monster truck show) were after having 2 bananas with rice cakes. decided yesterday afternoon to try and totally elimaye sugar as a test. Since he’s so picky we decided to make a reward chart as well and just not feed him until he tries new foods starting after breakfast today. Still 100 percent organic on everything. Eye blinking was pretty sub
  8. Excited to see the nutritionist, it’s someone who was recommended from this site that had success with their son. Things have been going pretty well overall. Going in the right direction and not getting worse. Blinking still present and comes and goes in frequency. Other tics (arms, hands, nose, verbal,) all present but better than last week. Especially considering how fast this all came on. Mood and behavior drastically better than last week. Going back about 11 days it went from blinking to 15 different tics and behavior, mood were out of control so that part seems like
  9. I would make sure they are board certified in something like Orthospinology, NUCCA, Atlas Orthogonal, Blair, or Grostic. There really is a huge difference versus traditional ones. Seems like we are making progress but it’s only been a few days of diet change. Flying out of state in a week to see someone who specializes in dietary changes for TS. She has been helping us over the phone on a few things until we see her. I am very hopeful at this point. The pieces seem to all add up when looking at his previous diet related to his symptoms. Salicylates seem to be one of the major r
  10. You may want to look into an upper cervical chiropractor if it came on after a fall. Not the issue with my son but I’ve seen it help with many after a trauma
  11. Don’t want to jinx it but I think we are seeing a pattern with salicylates. Yesterday he woke up lethargic. Improved as the day went on in terms of energy. Seemed to be having an OK morning but we slipped up on food. My wife gave him a some purple potato chips in coconut oil and things definitely increased in terms of ticks. Behavior was bad, very high energy and a bit out of control. Also realized pumpkin with millet was high (focused on millet and didn’t think about pumpkin). Settled down about 3-4 hours lately. Had an epsom salt bath and applied magnesium cream. Had a good n
  12. I wanted to detail our journey in hopes we may get feedback or be able to help others. We don’t have an official diagnosis yet but we are fairly certain it will be diagnosed as TS. My son is almost 5 and over the last 6 weeks blinking started. In the last 7 days it’s moved to various other areas including arms, nose squishing, burping, throat clearing, clicking tongue, and verbal tics. I’m going to list all the details in hopes it may help figuring out the cause or solutions In retrospect about 1 year ago he started sniffing his hand for 2 months or so and wiping across his nose. We
  13. Kevin, It was great to read your story! Maybe I missed it, but do you have a contact for the person that you worked with for the dietary changes or an outline of the diet? Or maybe she has someone in the Atlanta area she could refer us to. I’ve ordered 2 books from this site and not sure how much different they might be (Just ordered and waiting on arrival) Nate
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