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MLee

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  1. Like
    MLee reacted to madimi in So worried, daughter has tics   
    Hi Atex.
    My son is 9 and his tics are also slowly progressing every year, but after obsessing for many years for finding triggers and going from one doctor to another, I recently decided to take a step back and just enjoy life. Every kid with tics is unique with his own triggers. Personally for me i don't believe change of diet, gut health etc.. made any difference for my son. 
    Cbit didn't help my son either, he even told his therapist; why i have to change my tics they dont bother me i just want to be free. This changed my view a lot my son isn't suffering from his tics only i was sadly.
    Do i see triggers yes, screentime is a big trigger for my son, but i still let him, why take away something he enjoys just because he tics more while doing so! I see in the mornings he almost doesn't tic and towards the evening they tend to get more.
    Exitment is also a trigger for my son we went to a Water park and he ticced more.
    But there are also many times he doesn't tic at all. Like on the beach i rarely see him tic, where we spend many days cause we are living on a island. Or while eating dinner my son doesn't tic or when playing with his pet hamsters.
    So what im trying to say we can help a little, but cannot control the tics entirely.
    And maybe in a few years they be gone or maybe not.
    But me being more relaxed helped my son for the better for sure.
    Greetings
  2. Like
    MLee reacted to Chemar in Post vacation tic   
    This is a lesson we also learned the hard way!
    My son's reactions and length of waxing varied depending on what he was exposed to. Thankfully he was able to recognize how dramatically things could deteriorate by eating stuff that he knew triggered tics before.
    We did find detoxing with Epsom Baths very helpful, as well as some other things that benefited (eg acupuncture, amongst others)
    I hope things settle soon for your child @MLee
  3. Like
    MLee reacted to Chemar in Vocal tics   
    @MLee @JulesLou
    I think you have both added B6 (P-5-P)?
    But not sure if you tried NAC yet? (N-Acetyl L-Cysteine)
    My son did not respond well to it-but I know many others have had good results.
    The recent ACN/Latitudes newsletter also had this testimonial about it with B6
    https://latitudes.org/these-nutrients-helped-our-son-with-his-tics/
  4. Like
    MLee reacted to Chemar in Eye tics   
    @MLee
    We initially started Magnesium alone, based on Bonnie Grimaldi's research on TS tic reduction with Mag. The effect was very quick for my son with the Mag supplement at 400mg/day along with nightly Epsom Salts baths. It is generally recommended to be sure that there is an intake of Calcium (food or supp) at twice the amount of the Mag dose. My son was 10yo at the time, and his doctor said to use the adult doseage of megnesium.
    We added the B6 later based on the physician's recommendation, and it definitely helped with many aspects of Tourette Syndrome
    400mg is still the suggested adult supplemental magnesium dose as far as I know.
  5. Like
    MLee reacted to Chemar in Eye tics   
    Magnesium has always been a key factor in reducing tics for my son and he has used various forms of it over the years but never use magnesium oxide as it is very poorly absorbed. One really needs to find the chelated form that works best for the individual. We liked magnesium taurate, as taurine is also helpful for tics.
    He started the P5P form of B6 on recommendation of his Integrative physician, as it was explained it helps much in neurology and also assists increase functionality of other supplements.
    He still takes these key supplements.
  6. Like
    MLee reacted to Chemar in Eye tics   
    Hi MLee
    In my list of treatments that helped my son, I documented that both Magnesium and Vit B6 (in the P5P form) were overall very helpful for TS tics.
     
  7. Like
    MLee reacted to Chemar in Tics while eating   
    Hi MLee
    I have documented how starting magnesium was the first real beneficial natural treatment for my son in reducing tics. This was a mag supplement (best for him was mag taurate) as well as regular Epsom Salts (magnesium sulfate) baths. I learned about the importance of magnesium for people with TS by reading Bonnie Grimaldi's protocol & research in the original Latitudes print magazine. This was over 20 years ago.
    The B6(P-5-P) was added on advice from his physician to aid optimal function with the other supplements he was on.
    Yes, he has maintained those.
  8. Like
    MLee reacted to Chemar in Tics while eating   
    Yes, magnesium and B6 were also essential supplements for my son - we found the P-5-P form of B6 worked best.
  9. Like
    MLee reacted to Chemar in How is your son doing now?   
    Hi @MLee
    My son does well now and his tics are so minimal that hardly anyone would notice them. Even when they are triggered now - they are nowhere near what he once had in his preteen years! His tics started to improve as soon as he stopped the pharma rx meds, started specific supplements/nutrients, avoided things that triggered his tics. As he passed the teenage pubertal years, there was a continued improvement in the overall tics. He has a good job, works hard, nice apartment. Well adjusted, and, having dealt with TS since childhood, he is a more compassionate and empathic person toward others. He feels TS gave him a lot of insights he may not have otherwise had.
    Number one tic trigger still seems to be stress - which is often harder to control in this stressful world - and so he continues to create and play music to relax, plus he has a set up that allows him to unwind with video games that is not triggering for him.
    He has maintained a healthy organic diet, and avoids any food additives that have always triggered his tics (artificial colors, flavors, chemical fillers, MSG etc etc)  He also still avoids other environmental things that he has long known were triggers for his tics (eg chlorine pools, flashing lights, artificial fragrances/perfume etc). He continues to take certain supplements that work well for him. Experience has shown him that these are important to his overall health and well being, as well as to keeping TS symptoms minimal.
    Hope that answers your question :)
  10. Like
    MLee got a reaction from Chemar in How is your son doing now?   
    Thank you Chemar. So happy for him that things are going so well! It’s also nice to see that things progressively got better as he got older. What a hopeful post. Thank you!
  11. Like
    MLee got a reaction from Chemar in Vitamin B6   
    Tropea22, I may look into this as well. Thank you Chemar!
     
     
  12. Like
    MLee got a reaction from Chemar in School overnight outdoor camp?   
    Thank you Chemar. You have so many good points. I really appreciate your kind perspective and insight. I will take them to heart.  And you are right. You only have your youth once. 
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