Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

Everything posted by annaofsweden

  1. Need some help! I have a son, 6 years old, who started to show tics about 1,5 years ago at the age of 4. His hands and arms flew into the air at the dinnerstable, both in kindergarden and at home. It was always there, and only there. (I also need to add that he has never been interested in eating. Often I needed to pick him up early from kindergarden and feed him something because he was so low on energy. It is as if he does not feel hunger almost.) A year later he also started to run in our livingroom as well as in kindergarden. It could go on for quite some time and he was then very difficult to reach. He did not hear you, he just kept on running back and forth like he was in a trans. This occured every day. At the age of 6 he also started maiking noise when running, the number of hours running increased and his arm-tics (hands, arms) where much more frequent, now showing everywhere throughout the day. Every day. Watching TV or videogames make it even worse. We were devistated on his behalf, as we realised he could not control it. We have turned to regular doctors. But the waitinglist for appointments are long and the overall view is that "this is the way it is". We started to do a lot of research ourselves, while waiting and came across this forum. I have ordered the book and read hundreds of webpages. Many seem to conclude that a glutenfree milkfree diet is a good way to start. And so we did, 2 months ago. Milk was easy to leave out. we had already switched to lactosefree products since he always had stomach ace and was complaining heavily after every icecream he ever had). The first 4 days of the glutenfree, dairyfree diet was like a miracle. He suddenly became soo focused, almost no running, less ticcing and with a presense that I have almost ever seen. But after 5 days he started ticcing like I had never seen! And it was the worse ticcing we had ever experienced. It subsided after about 14 days. and the past 2 months I would say that he is: - More present and focused - Hungrier than before ( he can even refer to food as good) - Runs a lot less (now it os up to a maximum of 10 minutes, compared to hours before) - Only goes to the toilet once a day now (he used to go 5 times a day, food seemed to run right through him) HOWEVER (so this is my question) - His armtics seems more easily awoken (many times a day) - He all of the sudden reacts VERY strongly (with a lot of tics, almost shaking) to foods that he has never reacted to before. These are apples, raisins, broccoli, youghurt (made out of pure oats) - all strong in Salicylates it seems like. He also reacts heavily to some sweets (the tinyiest bit ever) that are red (red colour). This little candy costed him 2 days of ticcing and shaking. Why is he so very sensitive now? Does anyone of you out there have similar experiences? Right now I basicly feed him : no sugar, no gluten, no dairy and no salicylates. But I am concerned, because I want him to be able to eat vegetables and fruits at least. He has never been that in to candy, anyhow. I keep a food journal and keep track of everything he eats. I have changed his toothpaste (he was ticcing every time we brushed his teeth the past 2 years) and after choosing a toothpaste with no color or mint flavor the ticcing during brushing stopped the very day I switched paste. Please let me know your thoughts. I have started to question everything and I don't understand why the ticcing was reduced so heavily the first couple of days of the diet, but have increased his sensitivity. Looking for answers! Should I stop the diet? The lactoses is a factor for sure for him, but is casein? or is it the gluten that makes his stomach much better? I read some stories here where the tics stop a week after the diet is introduced. That is not the case for us. Does that mean it doesnt work? sincerely Anna