Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy

      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010

alexandros

Members
  • Content count

    6
  • Joined

  • Last visited

  1. Yes sirena, i found the book of horowitz on amazon and i'm gonna buy it. It seems very helpful. My question is If i do a strep test, is it possible to be positive even after years of strep?
  2. Thank you everyone. Since i stopped the antibiotics, i m taking vitamin c 1000mg, methyl folic acid 400mg, b6 50 mg, d3 4000iu with k2 50mg, magnesium 300 mg, fish oil (1 tea spoon) along with probiotics ( acidophilus and s. Boulardi) burbur pinella (30-40 drops/day) and water lemon. The healing process it is like i slowly discover a new world. I am now sure i had whatever it is always and as the days pass i discover new things of my true self, although i still have flashbacks of my past. I read a scientific article about lyme and personalities disorders such as narcissism. I found a lot of common things so it would be very interesting to hear your opinions. http://journals.sagepub.com/doi/abs/10.1177/1534650106295847?journalCode=ccsa
  3. I have to ask again these imporant things: is possible to has someone lyme all his life with mild symptoms whithout taking therapy and then flaring up with fever and becoming worse? Can a pandas child has strep without strep symptoms. Is strep the only way to have panda? why there are so many people-kids who have both lyme and pandas and what is the correlation between them?
  4. Thank you again, you helped me a lot. Yes, I think i have to change my plan therapy since i take 7 months the same antibiotics and supplements. I did a research and found that doxycycline can kill the spirochete but can incerease the cyst. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3132871/ . So i decided to switch it with amoxicillin. Which can kill the spirochetes and cyst as well. It is also less toxic than doxy. Yet, I will add Grapefruit Seed Extract for a more brave cyst attack and of course azithromicyn wich does a very good job on bartonella. Along with spirochete and cyst treatment, the plan says that detox involves water-lemon drink, clay on my body, pinela and a lot of vitamin supplements. I already take daily d3 and k2. About probiotics, i had been taking 250mg (1/day) of one which involves only Saccharomyces Βoulardii. Curently i did a reasearch about the right ones and i switched them with probiotics wich involves also acydophilus. Would you think it is an effective plan?
  5. Hello and thank you for your answer. what do you mean by saying antibiotics alone are not the answer. Could you explain it further? Yes, i contacted with a llmd, in germany but the price of visit is about 900 €. i cant afford it for now
  6. Hello to everyone and sorry forry my english, it's not my first language. I'm 21 years old, male. 6 years ago i had some rushes on my back and on my belly. Since then, my behavior changed dramatically. I'm able to see now what i did and i feel guilty. That period I was always angry, agressive and had rages that even lead me to become violent. I broke things in my house, things that even were'nt mine and the most terrible part ... i would become violent to my own family who love me like no other. I would bite, push, kick, yell and swear. The same period, i had other symptoms in addition, like pain on my sole, sleep problems, some memories problems, hyperactivity, especially when i was studying, and anxiety. So the second year of high school was terrible, my grades dropped, there were times that i wouldnt sleep one day in order to go to school and times that i would take naps during the day. My behavior even changed in school. I fighted 2 times even though i didnt start any of them, i had so rage that somewhat i was waiting for these moments. The third year of high school was a personal a bet for me. I did everything to reach my goal which was the entrance in civil engineering polytechnique. I did it and even if i was happy, i watched only some lectures the first semester. Every time i would go there i had severe anxiety, i couldnt listen to a whole lecture my mind was somewhere else than there. In order to complete something i need the double time. Beside all, I was extremely fatique and i was gaining weight rapidily. My sleep roblems were continueing, same with memories problems and mental but i could dicrease some rages and apologize for my fault sometimes, it wasnt the rule though. So we are now in the summer of 2016, me going to a France village in a volunteer programm for 30 days and failing on university. Returning and somewhere on october is when the started. It begun with a fever, i woke up with chest pain, tinnitus, headache, ear pressure, vertigo, lightheads, numbness, racing heart, dizziness, severe memory problems, depersonalization and a lot more, 24/7. I didnt sleep for 3 days in raw even if i was extremely fatique i couldnt turn off my mind. This is where abstract intrusive racing thoughts started. When i was trying to study, when i would eat, when i would sleep, when i would talk to someone, when i was in the gym, even when i was sleeping. My mind was 24/7 in a chaos and confused and i couldnt do anything to change. So my sleep was restless, its was like i was(is) awake and watching vivid dreams, i had also restless leg. i couldnt feel a joy when i was waking up and streching my body. Even when i was yawning i would feel exhausted instead of some hedonia. Some weeks after the fever, i had loss of libido. I did a testosterone test and was far away from the lowest limit. Besides all of these i had fears at night that there is someone in the house. Some times i have to say that i would ask for someone to sleep in my room. Also I was closing (still do) the windows because i was afraid of the neighborhood listen to me. Had that since the first year of university, but it became worse. After a lot of doctors, medical exams MRIs, On May of 2017 a doctor found staphylococus in me ear and gave me antibiotic therapy for 7 days. Doxycycline 2x100 /day. The 7th day i had all my symptoms but worse. I had to take my hormonological results from a hospital so i visited the medical emergencies and they told me my hearts doesnt fuction well for my age. I stayed there 7 days was in rage all the time without knowing why. I couldnt stand up but i couldnt sit down.i felt miserably and terrific. This is where i wrote my symptoms on google and found about lyme and coinfection. I had the rush and symptoms for bartonella and several lyme symptoms. Problaby the worsening of my symptoms was the herxing, i thought. In my country you can buy antibiotics without the permission of doctors, so i didnt only continued my therapy, but after a research on lyme and coinfection treatment, i doubled the dose , added azithromicyn 500/day, probiotics and some vitamin supplements. I did the a western blot test in my country and showed only one positive band on igg and igm, the p 41. I continoued the therapy and after 1,5 month i noticed some progress but not a big one. I did an eliza borellia and bartonella test and i'm postive on bartonella henselae igg (512 > 64) and bartonella quintana igg (126>64). On borellia eliza test, its doubtable on igg (3) and negative on igm (2). Unlike the results, I continued the therapy. My anxiety has been eliminated so my rages, my sister and mother say that i am back to my old self. Even though, every infectious doctor i visited after, claimed that i had had bartonella because i have only posive igg and if i have had it, with the first month its gone. My igg are 8 times more of the reference number in order to be postive. I searched it and found a paper from the university of iowa claims that if the igg are 256 and up then its active. One month ago, after 7 months of antibiotics i sent blood to a german lab. I was negative again on borellia elispot but i had low cd57+ NK (49). I have done all the test like syphilis, hiv, mycoplasma that can possibly dicrease cd57+ or can show postive p41 on western blot test and all came negative. I am stuck and i dont know what to do. Even if its lyme and bartonella that made me agitated and angry and even violent, i am really scared that i hide a monster that can be showed out of nowhere. Every day i'm thinking the same thing i read stories about kids who are very agressive with bartonella and lyme but i dont know if i do it because i want to find an excuse. I apologize everyday to my mom on what i did but it still there. As for the treatment i think it stucked also. I dont have a lot of symptoms i had, but my brain fog, memory and cognitive problems, along with sleep problems and some kind of ocd do not improve. I think i need antibitiocs change, but in order to do that i need a clear postive borellia test and i have done 3 different and all negative and doubtable. Something that i noticed, during the treatment, is that i do not bite my nails. I was heavily obsessed doing that for as long as i remember me. I was doing that till it was bleeding. Not only nails but the skin of my nails also. I had never had normal nail size in my life and all of sudden during the 3 month of treatment i have stopped bite them. I suspect someone need more of personal work to stop an obsesse and i didnt do any of it, it just stopped. Also my mom has arthritis, teeth problems hair loss, ear problems, itchy ears and sinus problems. My sister is positive on bartonella henseale igg(256), on chlamydia pneumoniae and yersinia. Which i know all are coinfection of lyme. But she is is negative on borellia western blot as well. She has a ton of synptoms which are same with lyme symptoms. I know also that borellia can pass from mother to child. So i want to ask you if it is possible to has someone lyme all his life with mild symptoms whithout taking therapy and then flaring up with fever and becoming worse. I know that this nail-skin biting habbit, is an ocd symptom which is also found on pandas kids. I asked my mom if i had strepptococcus, she said no. Can a pandas child has strep without strep symptoms. Is strep the only way to have panda? Something that i have not talked with doctors, is my thoughts and sleep problems. I daydream almost daily, have fantasy thoughts-dialagues and i am very concious of doing that. I was even searching if i have schizophrenia or other mental disorders. Also, seconds before falling asleep i hear screams or even words. My sleep is very poor , more likely nonexistent. Its like the time stopped for 8 hours and when it starts i continue my day. I dont know, i am really confused and do not know if these symptoms are lyme bart or something more serious and irreversible. I would like to tell me if these are classic symptoms or not. Sorry for the huge text. It took me whole afternoon to write it and correct the letter mistakes.
×