Report Please help...need a doctor in Dallas/anywhere for PANDAS in PANS / PANDAS (Lyme included) Posted May 9, 2009 For a Dallas doctor, you might want to consider this. Great Plains Laboratory is sponsoring a conference on biomedical approaches to Tourette's/OCD/Depression in Dallas on May 23 and 24th. The website is: http://www.touretteconference.com/ One of the speakers, Constantine Kotsanis, MD , is local to Texas and is also sponsoring a post-conference clinic for potential patients at the end of June. I am considering attending, even though I live in California. Hope this helps. - Liane Hi everyone,I need your help. I've been browsing this site for 5 years , but have not posted much. this is our story. I have 2 boys 9 and 5. My older one has tics for the past 5 years. His started at 3 1/2 to 4 years. We have been doing vitamins , homeopathy,antiyeast and some chelation. he was a lot better but for the last 3 months they are back. About 1 month back both my boys ( 9 And 5) were sick . When we tested them for strep,,,,my older one tested negative for rapid and my younger tested positive. that is time I saw tics coming back for my older one that is when I started thinking it might be PANDAS for my older one. we ordeered the culture test and his titers ASO andDNASE..they were also normal. so my ped doesnot believe he has pandas. So when I had asked his pediatrician to prescribe zithromax anyway and see she did reluctantly after another 4 days. He finished his course. I have benn researching on PANDAS like crazy and trying to find a docotr who is familiar with this. But the worst is happening again.....My little one on the other hand was given amoxicillin. But he started saying " my back is moving but i dont want to move". I did not understand then but for the past 3 days he has been doing that a lot and it has been hurting him. It is like he is moving his right hip and his whole abdomen is kind of twisting and cramping. My worst fear is coming true and feel totally lost and heartbroken to see both my kids going through this. Please help...I need a good doctor in dallas area who is familiar with PANDAS. the more I read on this ... the more scared I am becoming. I feel to blame. My little one was having a lot of problems with ear infections last year and have been dodging the toncilectomy till now. How I wish I had done it and maybe this would not have happened to him too. He is right now sick and complaining of headache , body pains and our ped sent him to the ER to check for RHEUMATIC FEVER. IT was a total waste ...they made us wait the whole day and did some blood tests which they said are fine and ER doctor said he looks good and he does not see the tic that I decribed to him....i cant see how he could not. The tests he ran are rapid throat test came back negative ESR it was 15 and he said it was normal no rheumatic fever CRP was .5 and he said it was normal no rheumatic fever EKG was normal ASO titer we are still waiting. he did not order the dNASE...said it was not neccessary. Pleasse I have the folowing questions... 1] I need a doctor familiar with PANDAS in dallas area but anywhere in US is also ok ....we can travel 2] can he have PANDAS and still test test negative 3] what antibiotic are you all using prophylacticallly 4] what is the dosage of prophylactic antibiotic I have to use for further prevention till I find the right docotr 5] any other tests need to be done. this site has been a blessing for our family through this crisis for the last 5 years and i am depending on you again for help. thank you all very very much from the bottom of my heart. Madhu.