Report Thank goodness I have been re-educated in PANS / PANDAS (Lyme included) Posted June 22, 2010 Would you mind sharing what your "very high D2" levels were? My DS8 had a D2 level of 32,000, a cam K of 139 and everything else at the top of normal range. Thanks. Thanks. This was, I think, our last appointment in our six year relationship. I won't go back. I will just have to drive an hour one way (and then 5 hours one way after we move this month!) to see Dr. Lin as our pediatrician from now on? The most amusing part was, after saying this about the CaM test, I mentioned that the other titer tests will come back in a week or so (anti tubulin, lysoganglioside, D1, D2), and he said, "Send them to me. I will want to see those." When we went to see Dr.L w/ a very high CamK (242), that number intrigued her, but she felt that she couldn't make treatment decisions based on that, however, she felt that the very elevated antiD2 was something that she could "hang her hat on" because it was very clear, study or not, that high antineuronal antibodies just should not be there and, so she could justify treatment based on that finding- so, I kind of see why the doc might be more interested in seeing those- as an indicator of autoimmunity.