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Updated March 19, 2010
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Updated March 19, 2010
We went to the hospital today re my boys tics the appointment came through after 5 weeks request from doctor. We had our first appointment in 2016 at the time my son was only grunting and sniffing although I was so upset for him as it was annoying everyone him being in close proximity. 1 year later and the tics have progressed to lots of neck shoulder and leg lifting whilst seated . I've got to say some days horrific where I could sob watching his little body throwing itself about. The consultant was very patient at Samuel Johnstone and I felt we were very important not just rushed in and out. He clicked with Lou and I was so relieved he was careful he didn't terrify him with diagnosis . My heart broke when Lou asked him to fix him and his face was devastated when he saiD it wasn't quite so simple to do that. The neurologist was anti medication and felt it wasn't the way for such a small child to go , he suggested pain relief as and when to help with the neck pain especaillly in the evening and always after food. I usually grade the pain with my 9 year old and ask him if he needs it on bad days. However we have been referred to CAMBS and I've looked at web site and can't see how this links into Tics or Tourette's as he called it. Has anyone been referred and what are the benefits .? Thank you for reading my post and I hope anyone else there with a child like mine is also holding it together .xx
Thank you for taking the time to reply to my post regarding the shake and vac . ive put it in the bin ! I used it to freshen my boys room and felt it was a trigger in the evening so wondered if anyone else hadn't put 2 and 2 together . My son has had some really bad days where his neck is rotating and his leg is lifting at the same time especially whilst sitting down . It's been really emotional for him and his neck has ached lots some days . We went to cinema on Sunday and pleased to say it was really much better. This week we had 2 days of rapid blinking and throats clearing but these haven't replaced the neck tic. We seem to be adding tics on the way rather than replacing them . Grimacing has stopped and so has tremors which I'm so pleased about for him. ive implemented lots of little changes with diet and fresh air no strong cleaning chemical either . No bubble bath just Epsom salts , regularly bed time and meditation at bedtime . Im hoping to see some more improvement but really not sure what else to try . im reading everythIng on the packaging now and horrified about how much chemical additives are in our food. thank you once again for your reply x
Has anybody noticed major increase in tics with exposure to shake and vac ? i don't know if I'm going mad as my boy has tics all over today . Is shake an vac a culprit? i appreciate any comments. im on a process of elimination as only just 2 days a go purchased Shiela Rogers family guide thank you for your time xx
I think it looks like a tic . My son has that sort of movement sometimes . Ive counted 10 different movements that my boy does all of which are slightly different . I hope I'm wrong xxx just watched your video again and notice your little boy raising his leg too. My son also raises one leg and almost slides forward at same time
I'm a newbie ! Ive just purchased Natural Treatments for Tics and Tourette's as my 9 year old boy has got horrendous tics again . We are off to see neurologist next month and I'm hoping he will do some allergy or blood tests on my son. can anyone tell me if they will refuse as the last time I saw him he wanted to offer my son drugs . I refused . This time the tics are 10 times worse and I'm guessing that will be his suggestion drugs. To,give background on my boy born prem 1 pound in weight so very fortunate to be blessed that I still have him. neck tics mouth grimacing head rolling sudden standing up,sitting down emotional at moment anxious some grunting but more like throats clearing . I have him on a 10ml of magnesium liquid form supplement at present and I'm not sure if it's making any difference yet. I bought magnesium oil to in spray form but he hates it and I think it's too stressful for him to insist he has it. Id welcome any help or ideas you may have as to,be honest I'm desperate to get my little boy back . thank you Suzanne xxxxx Chemar Hi and welcome. You may want to copy your post from your profile page to the TS/Tics forum as others are more likely to see it there. https://latitudes.org/forums/forum/1-tourette-syndrome-and-tics/
I'm a newbie !
Ive just purchased Natural Treatments for Tics and Tourette's as my 9 year old boy has got horrendous tics again .
We are off to see neurologist next month and I'm hoping he will do some allergy or blood tests on my son.
can anyone tell me if they will refuse as the last time I saw him he wanted to offer my son drugs . I refused .
This time the tics are 10 times worse and I'm guessing that will be his suggestion drugs.
To,give background on my boy
born prem 1 pound in weight so very fortunate to be blessed that I still have him.
sudden standing up,sitting down
emotional at moment
some grunting but more like throats clearing .
I have him on a 10ml of magnesium liquid form supplement at present and I'm not sure if it's making any difference yet.
I bought magnesium oil to in spray form but he hates it and I think it's too stressful for him to insist he has it.
Id welcome any help or ideas you may have as to,be honest I'm desperate to get my little boy back .
Hi and welcome.
You may want to copy your post from your profile page to the TS/Tics forum as others are more likely to see it there. https://latitudes.org/forums/forum/1-tourette-syndrome-and-tics/