Hi Sheila,
Sorry that I'm just getting back to you. Here's where we are:
-We went to pediatric neurologist and he said that it was not a tic. He was pretty adamant and seemed confident. He dx it as a stereotype and said that anxiety was the culprit. He suggested play therapy as the solution.
-This sounded really good at the appointment, but when I started researching stereotypical movements, I am not so confident in his diagnosis. My son does not like to talk about the movement, but what I have got from him is that his neck makes him do it. He will often hold his head to the side or lay his head down. When he looks down, he buries his chin in his chest. It looks painful to me, but he has not complained of any pain.
-I have not noticed any other tics prior to the neck/head movement. He's 7.
-The movement has not changed to date. He has been doing it for a little over 2 months.
-My son is now doing play therapy. He has always had a "thinker" type personality. He does have worries, but nothing that has caused any life disruptions. He does great at school, has friends, enjoys sports.
-I have a second opinion with a pediatric neurologist scheduled in March. I was hoping to do this sooner, but that is the wait time for this specific doctor.
Thanks for your concern.