zekieban

Thank you all so much. I will try to find the nurse case manager for BCBS tomorrow. We were quoted $15000 per treatment, so a total of $30k. This is so mind boggling. Dr. L talks of curing our son and seems highly optimistic, so when I see BradsMom's response, it is disheartening. But what are we to do? Our son has struggled for so long -- ups and downs-- and we have had some success with plasmapheresis but not what we were hoping for. I'll keep you all posted.

Hello, Our 18 yo son is scheduled to receive two infusions of ritucimab later this month. Has anyone had success getting insurance coverage? We have Anthem BC/BS and it was suggested by Dr. L's office that we proceed and pay for the treatments (very expensive) and then apply for coverage, with the theory that if it is denied prior to getting the treatments, it will never get covered. But we are worried about proceeding in this manner. It seems like we need to do something regarding insurance coverage prior to the infusions. Does anyone have any suggestions? Thank you so much.