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sullysmom

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  1. My DS was recently disgnosed with Pandas (took him to Dr Trifiletti). His main symptom is food adversion. Since September he has had a fear of choking and has only been eating soft foods. (Yogurt, Pudding, Soup, Pedisure). Within the last few weeks, he added scrambled eggs (which he ate non stop for 2 weeks then dropped it) and now he added pasta, which he has been having every night for dinner. I have a phone call scheduled with Dr T on the 18th to go over his bloodwork and see what treatment he suggests. All other symptoms (intense panic, seperation anxiety, mood swings) have all gotten much better but his food adversion (and fear of choking ) hasn't. For any of you that have gone through this. Will merely prescribing an abx, actually make it want to eat again and get rid of the fear? Or will I have to go with a low dose anti-depressant-therapy? He is seeing an eating therapist once a week. I will keep going to her because I feel like she can really help him long term (he's always been a picky eater) but just curious... what finally got your child to eat again and how long did it take? Thanks so much for any advice, this community has been so helpful and truly a life saver for me.
  2. Thank you Bob!!! Much appreciated!
  3. Just got my sons blood work results that Dr T ordered. These were the results that were abnormal but I don't know what it means. Vitamin B 12 - 1370 IGG Subclass 2 - 407 IGG Subclass 3 - 106 Anti Streptolysin - 273 Absolute CD3 Cell - 2665 %CD 4 - 26 (low) Absolute CD 8 Cells - 1175 % CD 16 +CD 56 - 26 Absolute CD 16 +CD 56 1147
  4. This is what I struggle with....

    Sorry, I should have given more information. My 7 year old son started with panic attacks and a fear of choking that started out of the blue on Sept 1. We had put our dog to sleep a few week before this (and my son came with us) He has always been a little anxious and attached to me but it got much worse around this time. Right after it happened, he tested positive for strep. When I googled strep and anxiety, I learned about the world of pandas. His eating is getting better slightly, his anxiety is so much better and his personality is pretty much back to normal. I had made the appt with Dr T a few weeks ago and kept it just in case. I guess I am questioning myself more than anything....did I read the Pandas symptoms and panic and assume he has it or can it just be anxiety (related to the dog situation)? Will the blood test results confirm Pandas for sure or is it just a guideline?
  5. How can you tell if it is Pandas or just plain old anxiety? Especially since Pandas is a clinical diagnosis. Took my son to see Dr Trifiletti last week (loved him!!) and he ordered a bunch of blood tests. Waiting on the results.....but I keep going back to 'what if he just has anxiety? - especially if the blood work doesn't show anything.
  6. Dr B or Dr T?

    Thank you!
  7. Dr B or Dr T?

    I live roughly the same distance from both Dr T and Dr B. They both have the same wait time to get an appointment. I know they are both excellent doctors. Any reason I should pick one over the other? I am suspecting that my son may have Pandas and possibly a co-infection (Lyme's), His major symptom is food aversion (feels like he is choking). This has been going on since Sept 1. Been to many doctors that just think it is anxiety (which it could be but when all this happened, he tested positive for strep) Thanks in advance for your help.
  8. My happy go lucky 7 year old son started having irrational fears of choking. The 1st episode started on Sept 1, then went away for a week, the 2nd was a week later and the 3rd on Sept 15. Since then he has not eaten any solid food. He is surviving on pudding, yogurt, ice cream, tomato soup, vanilla shakes and pediasure. About 3 weeks after this started, the pediatrician took a strep test (not because he was complaining of a sore throat, but because she said his tonsils looked enlarged) the rapid test was negative but the one from the lab came back positive. Besides the choking fear, his whole personality seemd to change overnight, he suddenly was freightened by everything, suddenly began having panic attacks and moderate to severe seperation anxiety. It was not until I googled anxiety and strep did I learn about the whole world of Pandas. He was put on 10 days of Amoxicillin. The anxiety seemed to get a lot better but the choking fear did not. I went back to his pedicatrician and asked her about Pandas. She actually chuckled and said it was not a real disease and that she would never feel comfortable giving abx long term. She diagnosed him with anxiety and wanted to give him an SSRI - claiming he just needed 'to get out of his head' I refused the medicine and said I wanted to look into physical reasons first. I then took him to an ENT to make sure it wasn't something physical. She said it could be GERD but that since he just finished getting over strep, she could not scope him for a few more weeks. I then took him to a feeding therapist. She brought up GERD and possibly EOE. She suggested I take him to a GI doctor. I then tried a new pediatrician and although she has heard of Pandas and believes it is a real thing, because he is not exhibiting any motor tics, she doesn't think this is what he has. She took bloodwork to check for celiac, lyme and did a basic CBC panel. All came back normal. She also said she wants him to see a GI doctor and thinks it could be EOE making his throat feel tight and that the anxiety came after because he really feels like he is choking. When he is distracted, he is happy, laughing, normal. He has been going to school although some days it is a struggle to get him there (this was a kid who always loved school and never gave me a problem) He plays on a soccer team and has plenty of friends. But when he is not busy, his mind starts wandering and he tells me he is scared. When I ask him 'scared of what' he says 'choking'. I did make an appt with Dr B but it is not until a few more weeks. My questions are - can a child be diagnosed with Pandas in the absence of tics? Does this sound like Pandas? For those that have seen pandas first hand, did the symptoms fade with your child was busy and distracted? How can I tell if this is plain old anxiety?
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