

jep1978
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Everything posted by jep1978
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Just ordered it thanks. Does this work as well as ibuprofen in your experience? I am treating my kids herbally for lyme and bart, but not seeing the improvement I was hoping for, despite positive tests.
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Hi, when I give my 2 kids an ibuprofen dose it's like a light switch for good mood, creativity, engagement etc. I resist doing this more than once a week because im worried about damage. Does anyone know of a natural alternative that I can give all the time? Thanks
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Hi anyone familiar with the D-nase antibody test? My kids both tested out of range (>78) normal range is 0-77. But the test doesn't give specific number. I dont know if this is the type of test that most people would be positive or if this is significant. I would love any feedback.
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HIB (haemophilus influenzae type b)
jep1978 replied to jep1978's topic in PANS / PANDAS (Lyme included)
Thanks for the reply but he wasn't vaccinated -
Hello one of my children just tested high in this (>9) range is not given. Does anyone know if this is related to PANDAS or PANS? I see things online about meningitis and I am freaking out.
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Hello, I just had blood work done on my 2 boys. They both show normal in range for G-6-PD, Quant Anti Dnase strep antibodies, and same for RBC. But they both show elevated Anti-DNase B Strep Antibodies (>78, range 0-77). Anyone know if this is significant?
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Hello, I have a LLMD for my kids, but looking for a PANS specialist who is knowledgeable about Lyme as well so they can differentiate between the symptoms. I appreciate any suggestions, thanks!
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Hello, Has anyone used this treatment (low dose immunotherapy) for children with Lyme or PANS? Is this contraindicated in either? And is this a problem in kids with possible immune system deficiency? Thanks so much!
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Thanks
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Hello, I just got results today for my 2 children. One is equivocal and the other strong positive. I wonder if any of you have had this test done and curious if you found the results to be what you expected. Thanks
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Thanks everyone, much appreciated. We are currently treating for both Lyme and Bart with herbs under LLMD. I am just wondering about PANS since he isn't improving. We are open to IVIG and have ordered Cunningham panel testing.
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Thanks, hope I get a reply
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Hello, I am hoping some of you can help me. I have been on a Lyme/Bart "Journey" with my 8 year old for 4 years now. From about birth to 5 years old he had what is presumed to be congenital Lyme, and had very light developmental delay/mild ASD and some body issues like low tone, tired easily. We treated in various ways, and things were tremendously improved for about 1 year he was totally normal, happy, social, curious, good natured, academically advanced. He lost any concerns of ASD by age 3. We were so relieved. Unfortunately changes happened about age 4 or 5 slowly. He seemed to develo