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Greyhound

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  3. Has anyone tried MMS?

    in Tourette Syndrome and Tics

    Posted

    Well, not exactly just MMS, but what it makes with the activator.

     

    MMS (miracle mineral supplement) = sodium chlorite (NOT sodium chlorate)

    If mixed with the activator (I think it's citric acid) it makes chlorine dioxide of which you take a tiny amound with water or juice. Chlorine dioxide is also used as a water purifier.

  4. Tourette's Plus Naturally wiki

    in Tourette Syndrome and Tics

    Posted

    I had an idea that everyone could contribute what they know to an easy-to-use reference in the form of a wiki.

     

    I've put together the bare bones of it with some basic articles just to give an idea of what it might be like.

     

    What do people think of the idea? Who would be willing to contribute?

     

    Main page:

    http://tourette.wikia.com/wiki/Tourette_Plus%2C_Naturally

     

    List of articles added so far:

    http://tourette.wikia.com/wiki/Special:AllPages

  5. Worried - effects of anaesthesia

    in Tourette Syndrome and Tics

    Posted

    As some of you know about two months (or more?) ago I underwent general anaesthetic to have an operation. Now I know the anaesthetics are supposed to be safe and have no effects, but I'm worried because I've experienced more rage-like feelings and behaviour in the last couple of months that I had for several years before.

     

    I finally thought I was pretty much rage-free and now I'm worried and really upset because it's come back.

     

    For several days a couple of weeks ago I would get SO angry at myself and other things just because, say, I dropped something (which is another thing that seems to have worsened since the operation - I keep dropping things. It's so frustrating).

     

    I'll kick or punch an object or pull in about or whatever (NEVER a person though - I have enough control). I have enough control to never damage anything badly, but I've made a few minor damages.

     

    I thought I was rid of it but now it's come back today. I'm so worried and upset. I HATE this feeling. I even get angry because I'm angry and it just gets worse. I also hate the fact that it annoys my family. It's embarassing.

     

    The only thing I suppose is good is that I haven't returned to my full blown attacks like when I was little.

     

    It's so upsetting :(:( :( :( :( :( :( :(

  7. Anaesthesia and speech

    in Tourette Syndrome and Tics

    Posted

    I hope I'm posting this in the right section.

     

    Anyway, about six weeks ago I had an operation to remove an abdominal abscess and have been making slow progress. Anyway, I'm having mild problems with my speech (occasionally slightly slurred and with mild stuttering) and ability to think of the right words. I also feel I may be ticcing slightly more than before, although it may be a waxing phase. Can any of this be to do with anaesthetic? Has anyone else had problems after anaesthesia?

  14. licking/touching tics

    in Tourette Syndrome and Tics

    Posted

    I dont know if this is a tic or an OCD, does anyones child do this: my son (9) is escalating in his need to lick others and touch women's private areas. He seems very aware of when he does this, and will look at you almsot like for a reaction (?) but says he cant help it and he has to do these things. I wonder if the complusion starts because these actions are "not allwed" and forbidden? I dont know if other parents have dealth with this? It reminds me a litle of the topic of the mom who felt bad for getting upset that her son couldnt stop smelling. But needing to touch breasts? is that a tic? thank you this is getting so frusturating and i dont know what to do, im trying to give replacements to him but its not working. thank you.

    I feel that:

    tic = response to a sensation

    compulsion = response to a thought

  19. Even more confused

    in Tourette Syndrome and Tics

    Posted

    I tried to write about this a few years ago, but I didn't know much myself, so it could be inaccurate:

    http://multiconnection.tripod.com/greencon.../sametraits.htm

     

    All these conditions overlap to some extent.

     

    Aspergers:

    Core problem is social difficulties

    Other main problems include taking things literally, narrow interests/obsessions

    Other problems include inattention, sensory integration and processing problems, tics and compulsions

     

    ADHD:

    Core problems are inattention, hyperactivity and impulsivity (depending on type)

    Other main problems include executive dysfunction

    Other problems (caused by the above) include social difficulties

     

    Tourette syndrome:

    Core problem is tics

    Other main problems can include compulsions (although may actually be complex tics) and impulsivity

    Other problems can include social awkwardness and difficulties (sometimes caused by the above), inattention (sometimes caused by the above) and problems with sensory integration and processing

     

    Obsesstive compulsive disorder:

    Core problem is obessions and/or compulsions

    Other main problems can include tics (although may be technically compulsions)

    Other problems can include social awkwardness and difficulties (sometimes caused by the above), inattention (sometimes caused by the above) and possibly problems with sensory integration and processing (although I think this is less common than in people with Tourette syndrome

     

    But it's still not clear-cut and people can be diagnosed with more then one.

     

    I hope this helps.

  21. Shaking and weakness after eating

    in Tourette Syndrome and Tics

    Posted

    Not for tics specifically, for a source of Omega 3.

     

    Linseed oil is the same as flaxssed oil, but it's usually called flaxseed oil in supplements. In this case, they've called it linseed oil. It's like broage oil is the same as starflower oil.

    http://en.wikipedia.org/wiki/Linseed_oil (scroll down)

    http://en.wikipedia.org/wiki/Flaxseed

     

    Maybe it's a different form. I always get it wrong. But don't worry, I haven't been eating wood polish!

     

    This is the product (bought from a Revital health food shop, not online): http://www.biocare.co.uk/ecommerce/pdfs/144.pdf

  22. Shaking and weakness after eating

    in Tourette Syndrome and Tics

    Posted

    I've found out these must have been reactions to the new supplements.

     

    Because I was still worried about mercury contamination with the fish oil, I switched to a combined linseed and borage oil capsule. I don't know what the reaction was to - the capsule (they're weird green ones), the borage oil or the linseed oil. Well, I ay oil, but they're powdered which I found weird. Has anyone else had an adverse reaction with any of these things?

  25. Supplement types quick reference list

    in Tourette Syndrome and Tics

    Posted

    I'm not sure if this has been done before or not, but I thought a simple, easy to follow guide to supplement types and forms would be useful. Please let me know of any inaccuracies as I'm not an expert!

     

    Magnesium

     

    Best type(s):

    Taurate (good for neuromuscular health, taurine helps utilisation of magnesium, some people find it has adverse effects due to the taurine)

    Citrate (well absorbed, can have laxitave effect)

    Malate (well absorbed, malic acid part of krebs cycle (energy), chelates aluminum, tablets are large)

    Glycinate (well absorbed, gentle on the stomach, apparently particularly good for depression)

     

    Worst type(s):

    Oxide (not well absorbed, can have laxitave effect, relatively cheap)

    Dolomite (magnesium and calcium) (potential lead contamination)

    Aspartate (not a good form for those with TS, ADHD, sensitivities etc.)

     

    Calcium

     

    Best type(s):

    Ascorbate (ascorbic acid is vitamin C)

    Citrate (well absorbed)

     

    Worst type(s):

    Carbonate (not well absorbed, relatively cheap)

    Dolomite (calcium and magnesium) (potential lead contamination)

     

    EFA/Omega 3

     

    Best type(s):

    Pure fish oil (e.g. salmon oil) (good source of EFA/omega 3, potential heavy metal contamination, some people find fish oil worsens symptoms, capsules rarely found in pescitarian/kosher form i.e. they contain gelatin)

    Flaxseed oil (also known as: flax oil, linseed oil) (vegan/kosher alternative to fish oil, has to be converted by body to omega 3 - the system for doing so may be impaired in people requiring supplemental omega 3)

     

    Worst type(s):

    Fish liver oil (e.g.cod liver oil) (high amounts of fat-soluable vitamins - can cause toxicity, good source of EFA/omega 3, potential heavy metal contamination, some people find fish oil worsens symptoms, capsules rarely found in pescitarian/kosher form i.e. they contain gelatin)

     

    Omega 6

     

    Best type(s):

    Borage oil (also known as: starflower oil) (better than evening primrose oil)

    Evening primrose oil (cheaper than borage oil)

     

    Vitamin B3 (niacin)

     

    Best type(s):

    Niacinamide (also known as nicotinamide) (no flushing/itching/prickling, high doses can affect liver)

    Inositol hexanicotinate (also known as inositol niacinate) (no flushing/itching/prickling, less toxic as other no-flush forms, may not be as effective as other forms)

     

    Worst type(s):

    Niacin (can cause flushing/itching/prickling)

    Nicotinic acid (can cause flushing/itching/prickling)

     

    Vitamin A

     

    Best type(s):

    Beta carotene (pro vitamin A - is converted to A) (water soluable - overdose only causes yellow tinge to skin which disappears when beta carotene is stopped)

     

    Worst type(s):

    Other forms are fat soluable so toxicity is easily possible

     

    Oral chelation (mercury)

     

    Best type(s):

    Chlorella, broken cell wall (essentially a food so cannot achieve toxicity, vitamin rich, takes a long time with large doses but is more gentle on the body than other non-oral chelation methods, may itself be contaminated with mercury but it should 'keep hold' of it and not release it into body, fairly expensive)

    Coriander leaves (also known as cilantro) (crosses blood brain barrier so good for mopping up last of mercury near end of chelation but is not recommended before this as it can allow mercury to enter brain, should still be used with chlorella as some authorities say it mobilises the mercury but that it's up to the chlorella to chelate it)

     

    Worst type(s):

    Chlorella, cell wall unbroken (chlorella with an unbroken cell wall is not very useful)

     

    Zinc

     

    Best type(s):

    Picolinate (probably best absorbed type)

    Sulphate (well absorbed, this is the type successfully used in studies of hyperactivity)

    Glycinate (well absorbed)

    Gluconate (well absorbed)

     

    Worst type(s):

    Oxide (not very well absorbed)

     

    Polyphenols

     

    Best type(s):

    Pycnogenol (also known as: pine bark extract) (very good, very expensive)

    Grape seed extract (not to be confused with grapefruit seed extract) (cheaper than pycnogenol, perhaps not as effective as pycnogenol but still good)

     

    All supplements - pros and cons of different forms

     

    Tablets (easy and convenient, can be halved/split/divided easily, generally cheaper than capsules, generally not as pure as capsules due to substances needed to bind contents together, some people can't swallow them - they can be powdered and sprinkled on food/in drink but it's not as easy as with capsules)

    Capsules (easy and convenient, generally more pure than tablets due to lack of binding substances, can be opened up and sprinkled on food or added to drink, generally more expensive than tablets especially if wanting non-gelatin ones, not easy to half/divide up, capsule shell can be sticky when trying to swallow)

    Liquid (can often be mixed into food/drink, if no sugar/sweeteners/colouring added it is probably quite a pure form, not as easy or convenient as tablets and capsules, often less palateable unless they contain added sugar/sweeteners which aren't recommended, often must be kept refrigerated)

    Powder (can be mixed into food/drink, on its own not as convenient as tablets and capsules but can be put into empty capsules which is cheaper than buying ready-made capsules but is fiddly and time-consuming)

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