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MichelleAnti-EMom

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  1. I have a question. I have 2 children that have pans/pandas symptoms. I was diagnosed with Anti-E antibodies in my blood before I had children they diagnosed me with Anti-E before a surgery in my pre-op labs before an ovarian tumor removal. All of my pregnancies were complicated by these Antibodies. It is like being RH NEG but there is no injections they can give you to stop the process. I am from a very small area and if If I could live life over again would have gone 2 a larger hospital to deliver. Long story short 2 of my children were born very jaundice from these antibodies. They debated on treating my daughter with Intravenous immune globulin (IVIG) which is standard for treating these infants in the end our former PED chose against the IVIG and my daughter's bilirubin levels went very high. My antibody levels were highest in my last 2 pregnancies and those are my 2 children that have PANDAS/PANS symptoms. I have wondered for a very long time if these antibodies could have caused my children's autoimmune issues??? Any other Mom's here have pregnancy antibodies?
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