Yesterday, after three years of struggles and misdiagnosis we finally got our test results back and met with our doctor. My DS(7) is positive for Lyme, Bartonella, Babeosa and received a diagnosis of PANS. I am hopeful, because my son will finally receive the treatment and support that we desperately need. I have a couple of question that I'm hoping those of you with experience with these diagnosis can answer.
First, my doctor is treating DS with Zithromax and another antibiotic (can't remember the name offhand). Does this make sense? DS is not currently in a flare, though of course, he is symptomatic....
Second, if your child had tic borne illnesses, once you treated those infections, did PANS flares continue? I'm terrified of what the next flare might bring.
Thanks so much for any insights.