Hi,
I've been reading the posts on this forum for a while but this is my first time posting. My daughter had an abrupt onset of tics Sep 29, 2016. Multiple tics showed up at once. The most visible was one that I haven't seen on the many lists of typical tics I've read. She would tap her face many times repeatedly. Over the last 10 months we've seen many tics at the same time; sniffing, shoulder shrugging, pulling clothes, lip licking, lip pinching, tongue side to side and more. After googling the first few weeks, I was convinced she was classic PANDAS. I found an immunologist who ran pet scan and blood tests and diagnosed her. Put her on abx for 6 months and one treatment of IVIG. I don't believe the treatments had much effect and the tics keep waxing and waning, although we never saw them as bad as the initial onset (first 4 weeks). The new one now is she touches her chin with one had and then the other. Everything is in doubles. She'll scratch her face (gently) one side and then the other. Pass her finger up her forehead twice etc. We saw a neurologist who disagrees with the PANDAS dx. We've had her on magnesium (150mg) since we finished abx for the last 3 months. It seemed calmer but the last 3 weeks or so the frequency has picked up. I've read so much about diet, casein free, gluten free, supplements. All the info is so overwhelming. For every post that says natural treatments help, there is another that says there is nothing to do about tics. I can really use some guidance as to where to go from. I've gone from a lively, optimistic, energetic mom/person to what feels lifeless. Like everyone, I just have hope every day that it'll just stop spontaneously. I just feel like doctors can't help me. Thanks for any advice I can get:)