Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy

      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010

lwei66

Members
  • Content count

    12
  • Joined

  • Last visited

  1. I've found 2 ways to reduce tics

    Hi enessimsek, Have you taken any supplement in this long 18 year journey. thanks for sharing the experience. Winson
  2. Seasonal tics

    Hi Tbell1, it sounds like your son eats very sugarly snack, based on lots of feedback on the discussion forum and from Sheila's book, sugar or sweets can certainly be a major trigger of tics.
  3. Daughter has developed some tics

    Hi, My son started to have tics the beginning of this summer. He had multiple tics such as shoulder, neck, hands and legs. He was ticking every second. After reading many postings on the platforms of this site and joined as an advanced member, I was able to read many useful articles about tics and OCD. It really helped me and reassured me. We have given my DS fish oil, multi vitamins and probiotics as supplements in addition to the traditional Chinese herbal medicine subscribed by a Traditional Chinese medicine doctor for a month and half now. His tics are no longer noticeable. He just started having a cold few days ago, we gave him cold medicine. It does not seem to cause flare up n his tic. Hope this gives you some reassurance.
  4. Just to add that we also put my DS on a organic food regime to reduce exposure to vegetables full of pesticide/herbicide.
  5. Hi bobh, Thanks for the reply. After reading Shiela's book on Natural treatment for TS, I started to dig into the blood test that the hospital did for my son. I found out that the strep Titer level was only at 200, which means negative for strep infection for my son. So thinking back, it was possible that the abx (penicillin) might have aggregated the tics. Anyway, since my last post, my DS' tics has improved great deal, from every second to not noticeable. In fact, my DS is telling us that he rarely has tics on a daily basis. What we have done is to give Fish Oil, multi-vitamin supplement to my son in addition to Chinese Herbal medicine drinks. We also give some probiotics to my son. Very fortunate to have found this site. People are very kind and always want to help and share information.
  6. Hi Chemar, I am new here. I am also looking into giving my son Magnesium supplement. Does Mg supplement/epson salt work for your loved one? thanks, Winson
  7. 7 year old tics

    Hi Hope36 How is your daughter now? I am new here because my 8 yr-old son developed Tics about 1 1/2 months ago. On the worst days, he was ticcing every second. As a dad, I worry so much with tons of anxiety myself. I gave my son Fish Oil and some Cod Liver Oil. We also give my son herbal medicine. So far, the situation has improved some what. Tics frequency improved from every second to 2 or 3 tics a minute. Sometimes we see 10 minute tic free intervals. Following Dr. DeMare's book on Natural treatment for TS and tics, I am now doing detective work to figure out the triggers for my son's tics. I do believe that my son's tics was epigenetic and brought onset by environmental/dietary triggers. It will take time to slowly identify the triggers and then hope that there is ways to address each of the triggers. Hope that your daughter's situation has improved.
  8. Taurine & Fish Oil

    Hi Worried Mommy, How is your DD now? I am new here because my 8 yr-old son developed Tics about 1 1/2 months ago. On the worst days, he was ticcing every second. As a dad, I worried so much. I have bought Dr DeMare's book and also gave my son Fish Oil and some Cod Liver Oil. We also give my son herbal medicine. So far, the situation has improved some what. Tics frequency improved from every second to 2 or 3 tics a minute. Sometimes we see 10 minute tic free intervals. I am now doing detective work to figure out the triggers for my son's tics. Hope that your daughter's situation has improved. Winson.
  9. I found this video to be very useful. thanks for the link.
  10. Hi Kim B, I am new here too, my DS8 also had sudden onset of tics from a month ago. He had really bad multiple focal tics with head jerking, shoulder shrugging, arm jerking, lately some thigh jerking. At the worst period, his tics were non-stop. I hope your daughter has overcame the tics since then Thank you.
  11. Short Poll for PANDAS/PANS Mothers

    Hi, I am new here. Your poll gave me an idea; is there any statistics on what percentage of the patients that have PANDAS/PANS or TS was breast fed for over 3 months or more? Lwei66
  12. Hi, I am new here. My son just turned 8, he developed motor tics (shoulder, hand and head jerking) one month ago. We went to hospital and had blood test as well as throat swab. The throat swab came back negative for strep but his blood test came back with elevated strep antibodies. Doctor ordered 10 days of antibiotics. My son's tics is very frequent (multiple jerking less than every 5 seconds). Before this motor tics, we also noticed some exaggerated clearing of throat sounds couple of months before the motor tics onset. We got some coughing medicine for him at that time, and it went away, so we did not pay too much attention to it. Anyway, I have been reading postings on this site, they are very helpful. But I am at lost what needs to be done for my son's tics. Is it possible that the antibiotics prescribed by the doctor did not completely killed the strep? How can we be sure that he is now cleared of Strep? Should we do blood testing again? I also seen posting here stating that streps may hid behind tonsils which is hard to kill with antibiotics, is that true? I am worried about my son's tics and his condition. Any advice is appreciated. thanks,
×