I've been reading on this forum (whis is a great ressource) for quite a time now but this is my first post. English is not my native language but I hope you can understand everything. I'm a young adult and have ocd since I was small child. Roughly a year ago my ocd almost completely vanished for some days while I was taking steroids for another reason. Then I was searching on the internet why that might have happenend and found out about PANDAS. I also learned about typical additional PANDAS/PANS symptoms of which I have/had some: I had bad separation anxiety while I was a bit younger, still have some texture and sound sensitivities and my mom told me that when I was young I had phases where I needed to urinate extremely often. On the other hand my ocd never "waxed and waned", it's always there (maybe this was different when I was very young while the whole thing started, but I don't know).
My question is, based on your experience, how probable is it that I might have Pandas or Pans? And if you think it's probable, would it be wise to do the Cunningham Panel as a first step? One week ago I told the psychiatrist who diagnosed ocd some years ago about PANDAS and while he finds it controversial I think he would support me.
Many thanks for reading!