PansLymeMom

My 18 yr old daughter with PANS and Lyme also goes through short periods (15 min to 1 hr) where she can only speak gibberish. This started with stuttering that went off and on for a few months. Now she will start stuttering, then speak gibberish, then not be able to speak properly (sounds like she had a stroke) and finally go back to normal. This really scared us at first but she has never stayed like this for long.

Hi! I'm new here but I also live in Alberta and am trying to find help for my 18 year old daughter with PANS, Lyme, Mycoplasma, Bartonella and severe OCD. I see this post is a year old, I hope that you have received treatment for your daughter already. I was wondering if you could share the name of your doctors with us. I have been fighting for over a year and a half to have my daughter treated with no luck. I have been in contact with the Health advocate, the Health Minister and numerous specialists. Nothing works. Because her trigger is Lyme and Mycoplasma no one will touch this. I saw a paediatrician in Edmonton who was supposed to treat Pandas but he will only treat it if it is caused by strep, he thinks Lyme is "the disease of the day" and was totally dismissive. Any help you could give me would be greatly appreciated. I hope your daughter is recovering.