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OCDandPANDASmama

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  1. DD will sit and pick the skin on her lips until they bleed.. Her newest tic is finger combing her hair, not a little, but to the point she's making it fall out. But her tics are mild compared to the big compulsions that literally consume her 24/7
  2. I'll definitely see about getting DD's sinuses looked at again, her former immunologist dismissed it as no big deal because they aren't debilitating but they've been bothersome long enough to justify further testing. Best of luck with the rinse, if I've learned anything from PANDAS it's always choose hope I've read a couple of people say IVIG helped relieve everything but the OCD, which unfortunately for DD is her biggest symptom. I'm glad it helped your DS though! Do you have any ABX recommendation if it does turn out to be a sinus issue for my DD? Thank you for your response! I alr
  3. -One concern I had with IVIG is the fact it has donor elements and I'm afraid it could transfer a virus or some illness not found to DD. Am I being paranoid about that? Glad to hear it helped your DS! -My DD skin picks as well but Drs said it's just a tic/habit, don't think her's is a compulsion. Thank you very much for your response!
  4. Hi, thank you so much! I'm so glad to hear your DS is doing well. 1) I think they did scope her sinuses before they removed her tonsils because they scoped her throat and diagnosed her with asthma. But I will certainly check her records to make sure. To this day, DD can hardly breathe out of her nose and has no sense of smell unless something is right under her face. Just wondering, what ABX worked best for your DS? 2) I'm going to ask her new doctor this week about testing her for Lyme. 3) My DD got put on Luvox when she was 11 and the first year it did wonders for her, but he
  5. Hi, new to the forum but have been observing for a few months. I'm in desperate need of any answers possible. My DD first started having severe OCD symptoms at the age of 7 (she's 17 now). I had no idea what caused it or what PANDAS was. Through the years she has been on every SSRI imaginable (which had very little - if any - effect on her OCD symptoms and gave her suicidal thoughts) , been through ERP and CBT, hospitalized, you name it... In late 2015, an immunologist ran several tests and diagnosed her with PANDAS. Along with the OCD and being prone to strep, she also has insomnia and sinus/
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