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Looking4answers

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  1. Thank you. We are waiting for the Lyme results. Not sure if we are dealing with pandas or Lyme but hope to figure that out first. In the meantime will look for thst book.
  2. This does help but doesn't quite help me to understand if my daughter is on the right antibiotic. it seems that the antibiotic kicks in and works well but symptoms increase between doses. this leads me to believe that the antibiotic may not be the right one. Does anyone have experience using both clavulin (augmentin) and zithro? anecdotally it seems that zithromycin works faster and better based on forum comments? i of course am working with a doctor but do want to see what others have experienced and learn from others.
  3. Hello, Where might I find a list of dosages and antibiotic types that are effective for both Lyme and PANDAS? We are unsure of which it is if any as we are waiting for blood work to return. I have a 7 year old who improved 50-70% on amoxicillion (called Clavulin) but wonder if the dosage is not strong enough or if it is the right type of antibiotic.
  4. Thank you so much for taking the time to reply. I will be looking for a doctor this week that is familiar with this or at least willing to read the papers. skype sounds like a great option. i am at least hopeful that the antibiotics will work after 10 days but it is useful to know that it may take a longer duration. i wish all that read this the best possible outcomes and thank you all for this resource.
  5. So sorry you're going through this, but welcome to the forum. I'm sure others with more recent experience will chime in, but given your pediatrician's response, I'm wondering if he/she is truly PANDAS-savvy? --no neither Doctor is savvy in PANDAS , at the moment I need to educate myself with the best antibiotic to use, where would I find that info? Did the doctor tell you why the switch in antibiotics when the Zithromax -- other than not fully eradicating the strep in 5 days -- seemed to be effective? --we went to another doctor and that doctor swabbed and prescribed amox with clavulin with the theory that if she swabbed positive that the previous antibiotic did not work When you say "tested positive for strep" still, after the Zithromax, was that by a throat swab culture, or was it a blood draw that tested for strep antibodies (titers)? --throat swab It may be that the amoxicillin (even with the clavulanic acid -- I'm familiar with that being called Augmentin, but maybe yours is a difference synthicyzation of the same components, or you're outside the USA?) -- isn't the right antibiotic for your kid, or for the strain of strep you're dealing with. --I am in canada and it might be too soon to say if the amoxicillin will work because it has only been 2 days There are some threads at the top of this PANDAS forum -- pinned threads -- that include some basic background on PANDAS including research papers, etc. It might be worth going through a few of those and sharing them with your doctor. --can I get a link to those? But in the end, most of us find that a short-term antibiotic course is insufficient for PANDAs and that a longer-term prescription (usually more than 10 days -- 30+ days) is needed. Unfortunately, depending on your child's immune system and some other factors the researchers are still trying to definitively figure out (genetics, etc.) why some interventions appear most effective for some, and others most effective for others. --what defines effectiveness? What should I expect if it does work? Are there Doctor's in Ontario canada familiar with this? I wish you the best!
  6. Hello Everyone, My 7 year old over the span of 2 days started exhibiting multiple tics. We went online and found info about pandas. She was put onto a 5 day dose of Zithromax and after 4 days was almost tic and symptom free. After the course the tics returned. We returned to a pediatrician yesterday and she is still testing positive for strep. We are now on clavulin (amoxicillin and clavulanate) and after first dose tics seem worst. Does it usually take some time to see results? Does anyone on here have any anecdotal advice for us? worried parents,
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