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MartinStoryKapusta

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  1. It’s strange I just feel so highly sensitive and anything seems to set it off that is remotely stimulating. And it just seems to be getting harder, I can’t remember the last time it felt better or plateaued.
  2. No, no illness really. Though I did travel to Nepal the Summer before and get a little bit of a stomach sickness, but that was maybe 6-8 months prior. I’ve moved back to Canada now as I didn’t feel I was getting the support I needed in London, but things seem to still just be getting progressively worse. I don’t know why. I’m trying to watch my diet, etc. And am in CBIT therapy and attempting medications now.
  3. Hi all, So my name is Martin, I’m 28 and dealing with TS-like symptoms. I wanted to share my specific story as sometimes it feels a bit different from the usual story so am wondering if this sounds ‘normal’ or a strange onset and experience. For me I never had any tics or anything at all when I was young. According to my Mom I did do this lick-lipping thing for a few months but that stopped completely (not even sure if that was a tic). Anyway nothing at all until I move to London, UK (I was born in Canada) - got into a serious relationship, left everything behind, and for the first time in my life had a lot of intense responsibility on me, including deep psychologically effecting meditation practices. 6 months into my time in London my eyes felt heavy, this developed to eye blinking, and then over the years has shifted to a million different tics. Lots of anxiety, intrusive thoughts, difficulty concentrating, 24/7 feeling restless and agitated, and also super hyper sensitive, anything at all from screens to socializing to transport in a vehicle all just aggravates so much. it just sort of feels like my whole nervous system cannot cope with modern life at all. The only time I feel better is when I dance or do creative things, get into nature, or take clonazepam (lol). The thing is it’s been getting more challenging day by day so it doesn’t ever feel like it has just plateaued. I also wanted to mention my Dad has tics and all, but he had it from childhood. Most people I speak to with TS seem like they’re able to just coexist okay enough and aren’t too immobilized by their symptoms, whereas I feel the complete opposite. Even reading hurts! It all just felt so sudden and intense and snowballing. Does this sound normal? I’m currently trying CBIT and am looking into Western meds, as I’ve tried some natural methods and they have not helped at all and it’s felt crisis-level these last few weeks. any thoughts? Leads? Similar experiences? Martin
  4. Hey all. Like many I notice my symptoms get aggravated when using electronics and specifically looking at screens (phone, tv, etc.). Sooo, this is has kind of had me avoiding watching TV or films much at all (which I miss so much, as a trained actor!!). I’m wondering if there is a loop hole here. What about buying a projector for home and playing films off DVD format on a blank wall? I think maybe a passive image on a wall might be a lot less visually stimulating than screens. Does anyone have an experience with this or any knowledge or leads? Any other loop holes or advice on how to watch films etc. with minimal visual irritation would be sooooo amazing. Martin (28 year old male, TS experiences)
  5. Hi all, Name is Martin, 28 years old and currently seeing a neurological naturopath & recieving some therapy (fingers crossed). In the meantime, I’m finding a challenge with something. Things have gotten progressively more difficult over the last several years, lots of stresses too like moving back home, ending a relationship, etc. However for the longest time during my experience of these TS symptoms, I have had this battle within between two polar opposites within me. On one hand there is this little-boy like energy that wants to play and express and stimulate with things like electronics and socializing and travel (all which aggravate my symptomns). They bring my joy. Then on the other hand I feel like my nervous system is crazily over-stimulated and needs rest and soothing, and so the old man in me thinks it best to relax and meditate and breathe and calm the nerves. What I find is I’ll usually have these bursts of expression where I get so tired of just isolating myself and relaxing and sitting with the uncomfortable sensations, and then afterwards my nerves feel worse for it because unfortunately it seems like a lot of what brings me joy aggravates me now. And so back and forth I isolate. Ive been struggling for so long about if I should just throw it all to the wind and enjoy myself no matter the pain/discomfort (is that even possible?) and just live, or be more cautious and relax and soothe my over stimulated system because that is what it may need. Obviously one way cannot be right every time, but not sure what is the road to healing here. Frustration builds when I don’t get to do all that I wish to, but then discomfort seems to grow when I let myself go too loose (like use screens or socialize). What a predicament! I’m a firm believer in the powers of the mind and think that these kind of attitudes can really shift things and open up the body for healing and change. Sometimes it feels like the controlling part of me that wants to calm and soothe and ‘get rid of it’ is the problem and part of the OCD-like behaviour that strengthens the condition. Other times it seems so obvious that my body just needs the relaxation. Or perhaps it is all just a paradox and there is no right way, only what seems to be needed in the moment and doing the best I can... Has anyone had any similar experiences? I feel like I’m in my own little world around this but surely I can’t be. Many thanks and looking forward to your responses. Oh yes to clarify this is a pretty adult experience. Martin
  6. Hello all! I’m just wondering if anyone has any experience of incense smoke or incense ever being a help or a hindrance? Burning incense is an important part of my spiritual ritual and I would love to keep doing so, but am always unsure whether or not the fragrance (albeit natural) could aggravate symptoms? I could see how something like perfume or chemicals could cause trouble. To be honest, the environmental possibilities have caused me a lot of worry rather than relief! So I make many things an enemy when they probably are not...! I hope that is the case here. Martin
  7. Sheila, Thank you kindly for all of your help. I'm reading your book as well and it has proven to be very inspiring and helpful. So much thanks to all you have done for this community. With regards to my question about trigger effect time, it seems it will be difficult to really get to the source of it without just cutting everything out and starting from scratch (I remember a case in your book where a boy was on a spring water fast of 5 days and then introduced foods one by one). However, I'm wondering, would it still be clear if I say, cut out just top allergens like dairy and wheat for a month, and watched for any changes, or does it all have to be cut out at the same time? And example food elimination diet cuts out a few allergens for a month, then reintroduces, and then tackles a new batch the next month. Also, I am doing my best to reduce dust, mould, allergens and chemicals in my home as much as possible. I'm wondering about natural scents in essential oils, are those to be cut out as well? Or are we mainly talking about chemical / artificial fragrances? Again, thank you kindly for all of your aid!!!! Martin
  8. Hello all! I'm just beginning my journey into investigating environmental triggers for my tics and such. I've started a food journal/trigger journal and was wondering about how long these things can take to affect? For example, when allergic to a food that may cause a reaction, would this be instantaneous, or could it take time? I'm asking because if I keep a journal it will be hard to tell if corn takes 4 hours and chocolate takes 1 minute! What are your experiences with this? Also if anyone can comment on chemicals, fragrances, dust etc. Thank you kindly!!
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