Jump to content
ACN Latitudes Forums

Sutjipto

Members
  • Content Count

    5
  • Joined

  • Last visited

About Sutjipto

  • Rank
    Newbie

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Hi Sheila, He tic less when he is sitting down especially when sitting down to watch TV or watching video on his hand phone. Once he stands up, he will start to tic more. When he is about to eat his meal, he will also tic more. when he is about to step out of the door to go out, he will also tic more. We are very puzzled.
  2. Dear Sheila, My son who is 18 has similar issues with tics. He will tic frequently (both motor & vocal) in an upright manner & when walking but is quite quiet and still when lying down. Has the parent whose son is facing similar issues found any solution yet? We are desperate for help too. Thank you.
  3. Dear Sheila, My son who is 18 has similar issues with tics. He will tic frequently (both motor & vocal) in an upright manner & when walking but is quite quiet and still when lying down. Has the parent whose son is facing similar issues found any solution yet? We are desperate for help too. Thank you.
  4. Thanks Sheila. They have replied my email this morning.
  5. Hi Everybody, I read with interest about the Repreeve patch. I am just wondering whether anyone has managed to get a sample recently? I registered for a sample and is still waiting for someone to get in touch with me. I tried to call them, but it went into a voicemail. I am ordering the sample for my 17-year old son. My son was diagnosed with TS when he was 6 years old. At that time we put him on gluten free diet and gave him small dosage of haloperidol and some supplements. His tics was under control and was hardly noticeable till about one year ago. Now he is making very loud vocal tic (shouting) at the frequency of every 2 to 3 minutes. There are days where he has to skip school. Haloperidol and diet does not seem to work on him anymore. We are quite desperate, we hoping the Repreeve patch can help to a certain extent. We stay in Singapore. Thank you Sutjipto
×
×
  • Create New...