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Rhnv14

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Everything posted by Rhnv14

  1. Hello everyone, Reading this forum for over a year, but this is the first time I'm trying to share my case and maybe find a good advise or analysis. My girl D is 7 years old. She is diagnosed with Lyme and Bartonella for 14 months, but we all understand the disease was there even 2-3 earlier. She's diagnosed and went thro 12 months of ABX and 3 Ivig treatments, none of them have improved her but kept her on a gentle status que. Her only symptom was motor tics, and very light vocal tics. And we thought we're handling the situation. In the last few weeks sh'e
  2. Hello everyone, Reading this forum for over a year, but this is the first time I'm trying to share my case and maybe find a good advise or analysis. My girl D is 7 years old. She is diagnosed with Lyme and Bartonella for 14 months, but we all understand the disease was there even 2-3 earlier. She's diagnosed and went thro 12 months of ABX and 3 Ivig treatments, none of them have improved her but kept her on a gentle status que. Her only symptom was motor tics, and very light vocal tics. And we thought we're handling the situation. In the last few weeks sh'e
  3. Hello all, I'm reading this forum for almost a year since my child DH was diagnosed with Pans caused by Lyme. You guys are inspiring and I learned so much here, though never posted before. DH is 7 years old. She was diagnosed with PANS very early in the game (with vocal tics and some phobias but nothing more), but her Lyme was diagnosed late (probably 3 years in), with many co infections we're treating with ABX. Our main struggle so far was mainly with vocal tics and some minor motor tics. It wasn't fun but manageable. 6 weeks ago DH had her first IVIG, followed by a 2n
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