Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  1. Supplements

    I feel like we may be experiencing a bit of an increase in tics too, but I'm just wondering if we can work through it and come out the other side with a decrease. I'm currently giving her 2 tsps of the children's mag/calcium liquid and 25mg/day of b6. I'm wondering if it's enough b6 though. She's small, only 6, and about 50 lbs. I was nervous to give her more than that. I'm so impressed with her! She's never taken a pill by mouth before last week and it took 2 days and she got it down and has no issues now.
  2. Guidance Needed for Likely TS

    Hi there, I don't have a lot of experience or advice to share, as we're new to this community, but just wanted to reach out because I know how hard it is to suddenly be handed a diagnosis that will change the rest of your and your child's life. My 6 y/o daughter began with her tics when she was just 4 years old. I knew in my heart once they began that this was what it was, but I kept hoping it was just a transient situation. We kept track of the kinds of tics and frequency as well as the waxing and waning of the tics for over a year so that when we saw the doctor we had grounds for a referral to a neurologist. I also made sure I mentioned them and my concern to the doctor every time we saw them. As far as I know, to be diagnosed you need a year of vocal and motor tics, or at least we did. Once we hit that year mark we had had relatively no tic-free time periods and our ped was happy to send us over to a neurologist. I hate when I hear that people have to fight for it. You know your child and your gut instinct is usually correct. We took it pretty hard in the beginning. I would cry constantly watching my small child taken over by the tics. But I quickly learned that educating both yourself and your child about the disorder helps. And helping them to understand that it's not something they can control and not something they should be ashamed of is important. I'm still terrified about what the future will hold for her, as I would say her motor tics are fairly severe at this point and have come to this point from being fairly mild just a year ago. But she doesn't seem to be bothered by them right now, it's really just myself and my husband who are bothered by them. As long as she's okay, I should be okay too. I can't imagine what it must be like having them suddenly appear in a teenager. I'd definitely push to have him evaluated and try to get some answers as soon as possible. Good luck to you!
  3. Supplements

    Hi everyone, I joined the forums a while back but have mostly been just lurking and reading up on everyone's experiences. Background for me - my daughter is 6 years old and was diagnosed at 5 with TS. At the time of her diagnosis she had some very noticeable tics but they were pretty stable and not really...I don't know...not really prohibitive for her. But just in the last 4 months they have increased quite a bit to some very complex motor tics. She only has one small vocal tic at this point. Of course the complex motor tics have me quite concerned about the severity of her TS and whether or not this is something that will continue increasing or whether she'll be lucky and have it calm down after adolescence. Currently she's a bit of a mess of tics. Jumping, some facial twitches, clearing throat, she's got one where she throws her hand in the air (accompanied by a vocal tic), and she's twisting her body in a weird way (doing something with her stomach I guess), snapping her teeth together, and one where she stares off (looks like she's completely checking out). Anyways, earlier this week after speaking with her doctor, I got a mag/calcium supplement and B6. Currently she's taking 2 tsps of the mag/calcium each day and half of a 50mg B6 tablet. First, I'm wondering if this is enough. We're also doing epsom salt baths but not regularly because she has eczema and can't bathe every day. Also wondering how long it might take to see improvement IF we'll see any at all. She's had 3 doses so far. I'm guessing it might take some time but I don't know. We're new to this! I'm just hoping something will help calm her body down. I hate to see her little body in such turmoil and can't imagine that focusing in school is easy with all that's going on with her.
  4. Newly Diagnosed

    We're definitely interested in a more natural approach to things. She's too young, in my opinion to explore medication. Also, anything that I've read about medication so far has sounded scary to me. We are dealing with some hyperactivity, OCD, and behavioral issues as well, but it's not affecting her too much in school so far and I guess that's what's most important. I think when she comes home and is awful and emotional/angry it may be in part because she's holding her tics back a bit in school for hours. I know she tics a bit in public but not to the degree that she does at home because her tics currently involve humming/singing, and being able to stand. It's got to be hard for her.
  5. Newly Diagnosed

    Hi there, My 5 year old was just diagnosed (on Monday) with Tourette Syndrome and I'm feeling a little lost. Lost, sad, frustrated, scared, nervous, etc. I know my emotions will settle down eventually and we will start to work towards acceptance and treatments. We have been suspecting this for quite some time. Tics began in January of 2016 when she was just 4 years old. But hearing the diagnosis confirmed has been hard. I want her to be proud of who she is and understand that she's not weird or bad or anything, so I've been trying to speak positively about the diagnosis while being honest with her. She says the tics don't bother her and she isn't getting picked on for it in school (yet). I just wanted to find a place to reach out and connect with others who have experience with this. Thanks for listening!