Hello, I know it was quite a while ago that you posted your question, Trevor, but what you wrote has really struck a chord for me. How is your daughter now? I so hope that she is not suffering as badly as she was when you posted back in November last year.
My daughter is 13 and she has very similar symptoms to your daughter with hearing voices, halucinating. She also has all the other PANS/PANDAS symptoms of tics, OCD, depression, anxiety and a whole host more! It is extremely distressing and traumatic for her and us and it came on very suddenly after an illness. She has been on anti depressants for 4 months and they haven't made any difference at all. She was also in a psychiatric hospital for 5 weeks. Nothing has helped. She has periods where her symptoms are bad but not terrible and then times when they are much much worse. We have finally tracked down a doctor in the UK who knows about PANDAS and she has undergone a load of blood tests. So far they have come back normal except for raised strep A titers. We are still waiting for some other results which should come in over the next week.
The PANDAS doctor that we are seeing said that the hearing voices and hallucinations are likely part of the OCD and having intrusive thoughts which she does really suffer from. So whilst it is not a 'typical' symptom of PANDAS, it can be associated with the condition through the OCD.
I was very interested to read that you have been giving her Diomox. I have never heard of this drug and will speak to our doctor about it to see if he thinks it might be worth considering for my daughter.
I just wanted to respond to your post so you knew that you weren't alone with having a child who hears voices.
Take care.
