Forum Community Guidelines
Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.
Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.
Announcements, media requests, and research requests
These need administrative approval. Please send to an administrator before posting.
Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:
You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.
When a guideline is violated
If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.
Updated March 19, 2010
The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.
Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.
Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.
Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.
Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.
When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.
Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.
You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.
Except for authorized legal investigations, we will not share any information we receive with any outside parties.
Updated March 19, 2010
Everything posted by argentanya
Nothing is working for my 12 yo old daughter who developed tics after taking Adderall one year ago. We immediately took her off the Adderall, and her first tic, a sigh breathing tic, has stayed the same. She sigh breathes almost every waking minute of every day. Yes, i’ve read the book, I’ve looked at 1000s of websites and combed through this forum. She’s had OAT and blood testing. I even spoke to the famous Dr. Walsh in person and he told me that my daughter’s tics are permanent.😢 We’ve seen two pediatric pulmonologists and a Holistic nurse practitioner. We’ve cleared my daughter of Candida - no effect on tics. We cleared her of clostridia - it reduced one of her minor tics. I eliminated gluten and dairy - no effect on her tics. She does not have allergies except for some Igg - eggs, oats, green peas and shrimp. I’ve eliminated those, no effect on tics. It is not OCD. It is not strep. It is not anxiety. I’ve eliminated most toxins and put her on Reduced Glutathione; no effect on her tics. I need to hear a success story from someone who “cured” their child of tics that resulted from Adderall (or another sort of stimulant medication). I am desperate and running out of solutions. I’m afraid that Dr. Walsh may have been correct.😢
Thank you for your continued commitment to finding natural solutions to tics and Tourette's. I know that you post articles on Facebook (which are very helpful), but I was wondering if you could create a Latitudes FB group where people can post their own issues (similar to this forum). The reason I ask is 1) there seems to be less traffic these days on this forum, 2) I belong to other Tics/Tourette's forums on FB, but they don't talk about natural treatments, and 3) i belong to other health-related forums in general (e.g., Pyroluria https://www.facebook.com/groups/pyroluria/, MTHFR https://www.facebook.com/groups/MTHFRGROUP/, etc.) that seem to provide an amazing amount of information. I think this forum was like that about 10 years ago, but people have moved on from forum-type information sharing to Facebook groups.
Looking forward to hearing from you!
HI Tanya, I agree that would be a good idea. Let me get my new book behind me (coming out very soon) and then come up with a plan. Sorry for the delay in replying!
argentanya replied to Mama_Bear's topic in Tourette Syndrome and TicsSorry no one has responded to you. I’ve been into this whole thing for a year now, and it’s a slow process. The most valuable testing for us so far has been Great Plains OAT and some random blood tests including strep antibodies (my daughter has none), MTHFR testing, copper, zinc and Vitamin D. We are now able to target focus her supplements. They may be helping her mood, but I have yet to see any effect on her tics. Interesting about PharmaGABA. We tried it once, didn’t seem to help. Maybe i’ll increase her dose to two chewable per day. Good luck!
Every time my daughter swallows pills, it sets off her tics. Now I'm wondering if the gelatin in the capsules is causing it...gelatin contains MSG. https://medium.com/@kimo_16661/how-i-discovered-that-some-foods-were-messing-with-my-sons-brain-3c6bd63daa6d
Thank you for responding. My daughter has been at overnight camp, but when she left there was no change. I know she's been taking a lot of supplements with gelatin caps, like her NAC. I'm currently looking online for non-gelatin options.
Curious to see if anyone has tried a ketogenic diet to reduce their child's or their own tics. If so, what were the results? The reason I ask is because if you connect the dots between the following two articles, you'll first find out that increasing the neurotransmitter GABA, may help reduce tics/Tourette's. The second article states that a ketogenic diet increases GABA in the brain and has been used successfully to treat epilepsy. http://neurosciencenews.com/tourette-tics-gaba-2815/ https://www.psychologytoday.com/blog/evolutionary-psychiatry/201104/your-brain-ketones Thoughts?
argentanya posted a topic in Tourette Syndrome and TicsMy daughter developed a breathing tic after having an adverse reaction to Adderall. The pulmonologist called it "sigh breathing." After we went on a cruise, she got sick, and then started clearing her throat and having esophageal spasms. The latter two have diminished, but the breathing tic is constant. She is no longer on Adderall (or any medication). Trying to find a holisitc approach and physician in the Chicagoland area too. Would appreciate any suggestions regarding dealing with the Adderall/tic connection from a holistic viewpoint and finding an appropriate local practitioner.
argentanya replied to argentanya's topic in Tourette Syndrome and TicsThanks, Sheila! So I found out some interesting info yesterday. According to Dr. Mensah's office, The Pfeiffer Medical Center (http://www.hriptc.org/index.phpis) was basically bought by a physician who is not trained in the Walsh Protocol (they bought the brand name of "Pfeiffer.") Drs. Mensah and Bowman of Mensah Medical (http://www.mensahmedical.com/) are the world-renown experts in pyrrole disorder. Ironically, Drs. Mensah and Bowman were both trained at The Pfeiffer TREATMENT Center - the original Pfeiffer - and both The Pfeiffer MEDICAL Center and Mensah Medical are located in Warrenville, IL. Confusing to say the least. Unfortunately, Mensah Medical charges $1,115 + labs ($250-$500) for 6 months of consultations. No insurance accepted, except maybe the labs, But I found a loophole. If you order a test from DHA Laboratory (https://www.pyroluriatesting.com/), you can buy a package ($205-$435) which includes a 20-minute phone consult with Dr. Mensah. The consultation fee can later be applied to that $1,115 above if used within 6 months. Possibly the labs too. Depends on if the doctor wants to run the labs again. Hope my detective work helps someone else.
argentanya replied to argentanya's topic in Tourette Syndrome and TicsThank you, Sheila! I just finished reading your book. Thank you for putting together such a comprehensive guide and for continuing to monitor and help other parents and patients out in these forums! I looked into these physicians, but after reading your book, I'm not so sure she has allergies/environmental sensitivities; I think it may be more related to brain autoantibodies/autoimmunity and/or candida. Do you have any experience with the Pfeiffer Medical Center in Warrenville, IL?