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xh1688

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  1. Dear all, We are desperately looking for a psychiatrist or neurologist in San Francisco Bay Area who is experienced to Autoimmune Encephalopathy, and is willing to prescribe IVIG. Any referrals and sharing will be greatly appreciated!
  2. Dear all, I'm looking for a medical doctor (Not ND) who is able to prescribe IVIG in San Francisco area. Thank you in advance!
  3. Dear all, My DS 16 has been on combined antibiotics for two years. His Lyme lab result always is negative (Only IgG P41 and IgG P39 “Present Abnormal”) but Bartonella is active. Since his condition seemed stable, I started to reduce the dose slowly for Rifampin and Azithromycin at beginning of July. A month later, he was completely out of antibiotics. His overall symptoms (rage, OCD, anxiety) seemed similar (not worse) than before stopping antibiotics. However, an odd behavior started a few days later when began to reduce dose of Rifampin. He took his shirt off and threw to the
  4. Hi, Has anyone tried this new supplement? https://www.nutreance.com/articles/redicalm?utm_medium=google_display&utm_campaign=redicalm_us_content&utm_source=latitudes.org&utm_term=social anxiety symptoms&gclid=EAIaIQobChMIobbdofzp5AIV5Rh9Ch19mQt-EAEYASAAEgKkE_D_BwE https://www.nutreance.com/products/redicalm
  5. Dear all, My DS 15 has Bart purple rashes on his body for since last year. He started Biaxin (replaced Azithromycin) nine weeks ago. 500 mg twice a day (continue with Rifampin). Since he had more aggressive and uncontrolled behavior, it was reduced to one Tab in the morning weeks alter as the recommendation from our LLND. His outburst was reduced, less OCD but took longer time to fall asleep. Starting from three weeks ago, he again had outburst 1-2 times per week. He hit the wall, counter, door and even hit me and his grandma uncontrollably. He shook his arms (new symptom), took his
  6. Dear all, My DS 15 has Bart purple rashes on his body for since last year. He started Biaxin (replaced Azithromycin) nine weeks ago. 500 mg twice a day (continue with Rifampin). Since he had more aggressive and uncontrolled behavior, it was reduced to one Tab in the morning weeks alter as the recommendation from our LLND. His outburst was reduced, less OCD but took longer time to fall asleep. Starting from three weeks ago, he again had outburst 1-2 times per week. He hit the wall, counter, door and even hit me and his grandma uncontrollably. He shook his arms (new symptom), took his
  7. Thanks for all of your sharing! Happy Holidays!
  8. Dear all, My DS 15 has been on Klaire Labs probiotics for five years. We switched to Renew Life couple months ago and noticed his OCD reduced and softer stool. However, I just found out Renew Life Formulas has been cited for Prop 65 violations. Please share good probiotics with other brands. My son needs to take 200 billion each day as he is on two antibiotics. Thank you in advance!
  9. Uncontrollable yelling! Is it yeast flare? My DS 14 tested negative to Lyme but has Bartonella rashes on his body. He has been on Zithromax for 3 months and Rifampin for 2.5 months. His OCD slightly reduced and sleeping seems little better. He even used more words than before (He is ASD with language delay issue). However, his rage and anxiety are still at the same level, screaming, hitting, yelling…. He started Japanese Knotweed and Curcumin (both herbs treat inflammation) three weeks ago. He constantly makes more non-verbal yelling, talks less, and has some tiny rashes (skin
  10. My DS 14 (Also ASD with language delay) started Azithromycin and Ceftin on July 23, 2017, added Rifampin August 13, 2017. He did herx but we notice small changes. Positive: (1) Better sleeping, (sooner to fall asleep and didn’t wake up frequently). (2) Rage slightly reduced in week 3—5. (3) OCD slightly reduced in week 5. (4) Speaks something new (never or seldom said before). Negative: (1) Started to yell loudly and make uncontrollable noise rather than using words in week 5 without reasons. Had more frequently outbursts and worst happ
  11. Hi, Please share if any of you have had positive or negative experience with one or more of the treatments below. Medical Ozone, Nutritional Infusions, LDA/ LDI, Botanical medicine, Oral Micronutrient therapy German biologicals. Thank you!
  12. My DS 14 has been on Azithromycin and Ceftin for 7 weeks and on Rifampin for 4 weeks. I did NOT see the real improvement on rage, OCD and anxiety. His behavior even becomes worse. Screaming, hitting, more enuresis even hit me and others. His rage really becomes uncontrollable. More enuresis symptom. He cannot stop to ask for restroom anywhere and any time! The only positive thing is he trying to speak little more, and his brain seems little clearer but it is not consistent. (He is also autistic with language delay). He started to bite his nail 2.5 years ago. I first time saw th
  13. My DS 14 is on forth week with Zithromax and Ceftin, and the first week on Rifampin. He has had loose stool on Day 2 with Ceftin and still has it but not every day. He is taking 200 billion probiotics. I didn’t notice obvious changes but his rage seems slight decrease although he still has outburst. His OCD stays on the same level with lots of repeating. Still constantly asks for restroom everywhere. Sleeping seems little better. He had tantrums on Day 2, Day 3 and Day 4 when added Rifampin. Screaming and hitting came back. But he tried to use his words little more (He is also
  14. Hi parents, My DS 14 has been on Klaire lab digestive enzyme for 5 years How often rotate enzymes is best for gut? Please share some good brand enzymes, which are free of glute, dairy, yeast, sugar and soy. Thank you in advance!
  15. So,your son actually took 2 capsules for Sach b, and also two capsules Renew Life Ultamate Flora? Once you were done for abx, how many billion for each probiotic you gave to him? Thanks a lot!
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