mdmom

MomWithOCDSon, What dose of the Solaray QBC Complext and how frequent are you using?

My DS20 is scheduled for two weeks of appointments at Rothman at USF in January. This will be his third visit there. can someone recommend an Airbnb rental that is within a short walking distance to the clinic?

It's been a long time since I have posted. DS19 is 85% better after initial PANDAS/PANS diagnosis at age 13. Still requires monthly IVIG (he has CVID), daily maintenance IV antibiotics, actively treating for tick borne infections following a tick bite last June. He also has POTS which is only somewhat managed with daily IV fluids. (He loves to tell people he has pots and pans LOL). He continues to meet the criteria for ASD (Asperger's). He has mild OCD (managed with exposure techniques he learned through ERP), mild social anxiety, executive function issues. After limited success at the local community college, we have determined that he would benefit from a more supportive college that will address his executive function and social deficits. We are considering a specialized college 7 hours from our home. The thought of him living in a dorm is incomprehensible considering his intensive medical needs and the fact that he still has mild PANS flares when he is exposed to a new infections -- even a common cold. Can anyone give me advice or share your story of your child having success living away at college? I realize that his ongoing medical needs might be more complicated than some. Unfortunately, he was diagnosed late in the game (dx at age 13 but onset age 4). Thank you.