Report Advice. Strong suspicion of PANDAS/PANS in our 7 year old in PANS / PANDAS (Lyme included) Posted February 8, 2017 Jenny jump up, how is your daughter doing? You described my 7 yr old daughter and a very similar experience with the medical and psych field. My daughter ended up with a NGT because she completely stopped swallowing fluids and food and it was determined she must have had a near choking episode. I questioned PANDAS and everyone was so focused on the absence of a recent strep infection and stating that is is a controversial diagnosis that one don't believe in. Things improved for several months but just returned last week, suddenly. Now I am trying to decide how to approach it. Here is the update: So its been about a month since I just started researching PANDAS/PANS. I have been eating and breathing all this info. I am on this site and three Facebook sites. Through all the info from all you amazing parents we have a diagnosis! Mycoplasma and Lyme. MARCONS also came back positive. She has been started on Zithromax. I have noticed a decrease in her hyperactivity, attention span and headaches....no question. Here is the thing...when I started researching PANS, she actually had improved so much since her onset of symptoms in September. She had been started on Lexapro and started an Intensive OCD therapy program which was 3 hours a day, 4 days a week (all at 7 years old.....so sad). Even with the improvement, things didn't sit right with me. She was still very hyperactive, fatigued, had headaches and a short attention span. Her father and I just kept saying "This isn't her!" That's what lead me to PANS. FYI: when I brought up PANS to her Intensive Program, they basically said they don't believe in it. In the last month, we have seen one PANDAS specialist but in my heart, that practitioner is not the right one for us. Very knowledgeable, but my gut says to keep searching. So now I am flying to see Dr. T at the end of the month. We also just had our house tested for mold yesterday. Today, I have a phone consult with a LLMD to discuss her labs to see how to proceed with that diagnosis. Point is.....thank you to all of you. The main thing I have learned is to move quick and fast with this diagnosis. I don't want another exacerbation like we had last fall. The worst experience of my life. We might go broke as we treat this.....I don't care. I want to get my daughter right and I will do whatever it takes!