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  1. Here is the update: So its been about a month since I just started researching PANDAS/PANS. I have been eating and breathing all this info. I am on this site and three Facebook sites. Through all the info from all you amazing parents we have a diagnosis! Mycoplasma and Lyme. MARCONS also came back positive. She has been started on Zithromax. I have noticed a decrease in her hyperactivity, attention span and headaches....no question. Here is the thing...when I started researching PANS, she actually had improved so much since her onset of symptoms in September. She had been started on
  2. MamaV...turns out it is Mycoplasma and possible Lyme. But still so glad I was a crazy mama and researched nonstop. I figured this out on my own. Even found a doc who was willing to order labs I just had to tell them what to order based on my reading. Thanks for your post 😀
  3. Some of my daughters tests are coming back and I think we are getting a better picture of what is wrong! PANS! Very high Mycoplasma (almost 3000) and some of her Lyme bands are positive. I know this does not guarantee she has Lyme and we need further testing. But I want to get a jump on things in case she does and research doctors. I have read over and over you want to go to a LLMD because they are good at treating co-infections as well???? Anyways, any recommendations? (By the way, I do have an appointment next week with a PANDAS/PANS specialist). I may end up just staying with this
  4. I hope this is an OK question to ask on this forum. I am new here and just want a proper diagnosis for my daughter. I have researched them both. We are in California so Amy Smith NP seems the most cost effective, but she also seems so experienced. Dr. T is ALL OVER the internet and this site. I have a phone consult with Amy this week and an appointment set up for Dr. T in February. My daughter has been so tortured by her OCD and all the other problems associated with PANDAS, I just want the right doctor/practitioner! I have already been through a few, a couple who didn't even believe in
  5. Qannie47: I agree. The more I build my timeline the more convinced I am. And thanks for the additional info. Those are some questions I have had. Wondering about it kinda "building up."
  6. Yes she developed a throat clearing tic. That lasted 3-4 weeks. I just received her medical records from her pediatrician. Remember I mentioned the hand washing problem in kinder. I know for sure it was fall, 2014. Just don't remember the exact date. But in her medical records, she had URI/ear infection diagnosed 9/30/14. She was treated with Augmentin! Then, no hand washing problem. I have called Amy Smith NP in Northern Cal. Waiting for a call back.
  7. My daughter had sudden onset OCD, age 7, in September. I remember it down to the minute! Before I start, here is her infection history from 2016, all ear infections. I am waiting for her medical records. I know some of the infections she was treated with abx but for sure she was not treated with abx. on 9/15/16. It was considered viral. She also has a history of enlarged tonsils...still to this day. Also, just chronic colds, sinus infections, allergies her whole life. Just prior to onset of symptoms, I was told by our primary to send her to ENT but then all this happened! Ear Infection Hi
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