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APandasMom

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  1. I started thinking that maybe you're a minor. Please be sure to talk to your parent and Dr before starting any supplements etc as they can have side effects or worse. Don't want to advise anything that may unintentionally cause harm.
  2. Was wondering how you are doing? I sort of understand what you are trying to describe. While I am not a Dr, it seems like it could be OCD. I have experienced some mild forms myself and my son has much more complex forms. I hope you look into seeing a Dr. If it's only OCD, I myself use myoinositol powder (not inositol) which can give some relief. Maybe talk to your Dr to see if can help?? For me the OCD is a loop that plays over and over until I can "fix" it. It can be over anything and can be for the most mild thing. And while I was always aware of the things and how they made me feel, it was not until much much much later in life that I was able to identify what it was. Once I had that lightbulb moment I am more able to identify my OCD trigger. Wishing you well.
  3. Did you ever find an answer to your question? It seems you are asking if an OCD related rule has been broken does it need to be resolved in order to clear it from your mind and move on? My son has "rules" that sometimes get broken and time stops until we figure out what has caused the issue. Sometimes it is difficult to figure out how to help. Sometimes he cannot communicate fully what the issue is. Sometimes he gets so upset that he cant talk to me and just has to go to sleep in order to reset. (And the next day is better.) My son is going through ivig and just getting older. As he gets better the OCD rules aren't always there. He is able to move forward without the interruptions. The original "rules" are no longer valid. Sometimes there are new rules and sometimes he's able to look back and ask why we "needed" things a certain way. And sometimes he simply doesn't remember how deeply impacted he was. Hope you are doing well.
  4. Hello, I know it's been awhile since your post but if your like me you are still scouring for anything that helps. I been there and it was the scariest time of my life. My son was 4 when he first had mild pandas (test confirmed titers high from strep) that was treated for years with azith successfully from integrated med pediatrician. He was 8 went it came back full force. Tics, OCD, AGGRESSION, anxiety. And it was as bad as you mention, sometimes worse. I am not a Dr but I will share with you what we did. First our Dr got us back on azith and referred us to an immunologist. This has been a long expensive trip that we are still on. As for what we could do at home: 1. He could not attend school. We ended up having to homeschool. 2. We had to eliminate anything that raised his dopamine. Too much Dopa we found was causing the rages/tics. Special diet...no artificial colors, no artificial flavoring, no enriched products (esp. folic acid , copper, choline nd B12 that affects his OCD.) I know I say no but later on we could have 1% but there is always tic flairs. The rest of the elimination gives a little room. We also found from Dr that he was lactose intolerant so any food sensitivities should be addressed as well. And no yogurt bc of added probiotics. 3. Supplements there is a lot of crazy stuff out there so proceed with caution. There's a lot of stuff both supps and prescrip that didn't work. Here's what we use that helps us. Natural vitality calm-ionic magnesium citrate. There are several options. We are currently on the gummies but at first I put unflavored powder in lemonade or anything. This helps with tics and anxiety for us. Next big help is motrin we use kids liquid dye free equate brand if avail. This brings down inflammation. We also use Homeolab USA- Kids Relief Syrup With Calming Effect - Grape Flavor. I am not big on homepath but I tried a lot and this seems to help. I think it's the valerian but I don't know for sure. And myo-inositol (not inositol) powder for ocd. Protocol for lLfe - pure - no additives. These are out staples, twice a day. With chewable iron once daily bc levels are low. When things are real bad we get refill of azith from Dr. We went through lots before we found one that didn't raise his Dopa. We make sure when using antibiotics to supp with probiotics Culturelle Kids Probiotic - packet with Lactobacillus GG only. Some probiotics have neg affects. Everyone is different. And lastly, when things are really really bad a quick thing to help lower Dopa is kava kava tea. (Not kava) we use yogi. We don't overuse bc it can bring levels too low. But it helps us. Yogi brand is good. It seems like for us it's a balancing act. Tics rage anxiety high when Dopa high, OCD high when Dopa low. So just trying to keep even keel as we go through numerous costly not ins covered treatments. I have no idea how anyone else does this. We consulted our Dr for all these, please do the same if you think any will help some have side effects. Here's my orig link as to why some of the supps listed I know it's for traditional ocd but it seems to help us some out of everything out there: http://www.alternativementalhealth.com/natural-healing-of-obsessive-compulsive-disorder-ocd/ For us it has been better by not limiting screen time. I found that it just seems to help to focus on something. Just have to watch the natural Dopa that could occur from it. Also being able to show rational online to support things I ask him to do. Things here are ever changing but they are so much better than they were years ago. ( I think puberty kicking in is helping too. ) We can have some sense of normalcy. But it's been a long winding road of patience understanding and support. We burned a lot of bridges and threw a lot of norms by the wayside. Just remember that bright loving kid is still in there and what they are doing is not really them. (And that they really don't mean it when they say horrible things.) Our son is 15 now and in high school doing well. Still in treatment, but 80% better. It WILL get better. (Believe me I had doubts-lots.) Wishing you peace.
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