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h_lee4

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  1. I'm looking into getting on a better probiotic (the one I'm currently on is not very strong) but I have a couple of questions: I want to get a pandas/pans friendly probiotic and I have read that it is important to avoid strains of streptococcus... does this include all strains? One of the probiotics I was looking into only contains one streptococcus strain and it is streptococcus thermophilus... not sure if this is okay? Is there anything else I should know about probiotics and choosing the right one? I have been sensitive to previous probiotics in the past but I seem to be much le
  2. I think it ultimately depends on the doctor. But I believe that one could be diagnosed for being just below normal. I do not know if PANS can screw with the numbers but I do know that the numbers are changing and fluctuating daily. Are you hoping for a diagnosis? If you believe a deficiency may be an issue I think the doctor would be open to addressing that due to the on going infections alone. You don't want to make a problem if there isn't one, but I can tell you low igg surely would not be helping with the infections and treatment would hopefully help! The normal range is still a rang
  3. Hello, I haven't been on this forum in a while and I have been spending time focusing on treating Lyme and co infections. I have a very complicated health history as I have Lyme disease, bartonella, mycoplasma, toxic mold (highest levels my doctor has ever seen), PANS, specific antibody deficient (immunodeficiency of IgG). I have many symptoms and I have a very hard time figuring out which symptoms are from what as most of the symptoms from all of these diseases/infections overlap. One of my worst symptoms is insomnia and irregular sleep/circadian rhythm, can't fall asleep until 4-7am and
  4. Hello, I was diagnosed with a specific antibody deficiency (IgG) when I was 13, about five and a half years ago. Have been on IgG infusions ever since. Started out by doing Sub Q weekly but later switched to IVIG once a month. I started learning about PANDAS/PANS about a year ago after my health took a rapid decline, but I believe I have had soft symptoms since I was about 13. I also have Lyme disease. I'm not sure if this is helpful, I am still trying to figure out how this all ties together.. If you have any insight regarding the combo of immune deficiency and PANS/PANDAS please let me k
  5. Hello, I hope your son is doing better! I'm sorry I don't have an answer to your question but I am curious about the improvement on the MB12 shots. What made you start doing the shots? Do you still do them and do they still work or was this only a temporary fix? I have been looking into MB12 a lot lately and am very intrigued that the MB12 shots helped.
  6. Hello, I am new to this forum and need some help! I am 19 years old and was diagnosed with PANDAS this past July. I was also diagnosed with Lyme Disease through IGeneX testing a few weeks ago. I had a lot of infections that were causing my PANDAS to flare and it took all summer and into fall to get rid of them. Now that they are gone my PANDAS symptoms have been SO much better, I basically thought my PANDAS was gone although I am still waiting to do an IVIG treatment. I started a Lyme treatment about a week and a half ago, the treatment consists of two antibiotics, doxy and ceftin. Th
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