My daughter started raging with anxiety, urinary urgency, overwiping, clothes sensitivity, food restriction, after coxsackie, strep and flu season, starting in February 2016. After research, I worked with her ped and after 3 days on Augmentin, she was back to 90%. She got CDiff in July, and we took her off of Augmentin. But she was declining again, so we started her back on Augmentin. We had one glorious week in September until CDiff came back (to me) and then stomach flu for DD, turned her asymptomatic CDiff into diarrhea. We've all been on Flagyl the last several months off and on and she has been in a constant flare since July. Now she's started a throat clearing tic, 300 times a day she asks me if she's going to throw up, and tilts her head to the side, with chronic stomach aches and worry. Our naturopath doctor gave her a Cunningham panel which showed no elevated titers (although she has been on Augmentin for several months) and ND said she doesn't have Pandas. Why does she do so well on Augmentin if she doesn't have Pandas? The ND says the Augmentin must have been helping her gut dysbiosis?! (And it helped her to stop being housebound, not eating, sensory/rage to the max, worry/anxiety, stomach aches, etc) We were referred for a full mental health evaluation and then referred to neurology and infectious diseases doctors through her pediatrician. Please tell me, what should our next steps be? There are very few specialists on the West Coast. We are in Oregon. What else should we test for? Who can help us? Any recommendations on specialists? We definitely can't fly anywhere, as she won't leave the house. We've spent so much money on supplements that don't do what Augmentin did. She's currently on Florastor and Gut Pro.
