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Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.
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You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.
When a guideline is violated
If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.
Updated March 19, 2010
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Updated March 19, 2010
Hi everyone So last month I went to see a doctor who follows William Walsh's research. I got the results of my blood tests (zinc, copper, histamine, pyrolles among others) yesterday and it seems the only thing that really stands out is an elevated pyrolle level (my count is 57 - according to my doctor normal level is between 5 and 10). I've been instructed to take the following: Vitamin C (1000mg twice daily) Magnesium citrate (500mg) Vitamin B6 (400mg) P5P (60mg) Vitamin E, mixed tocopherol version (400 IU twice daily) Evening Primrose Oil (500mg) Zinc Picolinate or citrate (60mg) Manganese, as gluconate (25mg) Biotin (2000mg) Really excited to start this regime, but first I need to figure out who I'm going to buy them from. I keep reading lots of stuff about particular brands being tested and discovered not to contain the advertised ingredients, or to contain the ingredients but not in the advertised amounts. With the hundreds of supplement companies out there and the less intensive regulations they're subject to it's really hard to know who I can trust. I've tried looking at reviews and finding websites listing the ones with Good Manufacturing Practice certifications (which I found out about today along with a bunch of other terms I don't really understand) but the whole process is such a confusing muddle! I was wondering whether anyone could give me any advice on which supplement manufacturers can be most trusted for accuracy? One website I've discovered which looks like it could be useful is www.labdoor.com, which says that it runs independent tests on supplements bought in shops and publishes the results (I say 'says' because ultimately I don't know how much I can trust the accuracy of their own tests). I'm a little discouraged by the fact that it seems most brands have at least one product with quite a noticeable discrepancy. Things like zinc, magnesium, B6 and vitamin C tend to test fine, but Vitamin D freqently seems to come up around 30% more or less than the dose stated on the label. It all seems like a confusing, tangled maze - an additional frustrating complication for those of us already tasked with moving our own mountains on our quest for health.
Hi everyone Have very recently discovered ACN Latitudes and really thankful I did! I've found it really encouraging to see so many people dedicated to effectively fighting mental illness, and lots of articles which actually seem to acknowledge the complexity and individuality of people's own experiences and the inefficiency of some of these general labels and checklists. I'd like to ask whether anyone has ever experienced something which has really troubled me for the past 4-5 years: It's very hard to describe. The best way I can put it is a real difficulty moving my mind in particular mental directions. Lots of ordinary thoughts and mental processes trigger this unpleasant mental sensation, which I find impossible to accurately put into words but is a little like the feeling you have when you instinctively flinch at something (ie. if someone unexpectedly claps their hands right in front of your eyes*). Often it's triggered by very miniature, individual things like attempting to recall a memory ("What did I do last Tuesday?"), taking in/absorbing information and instructions, moving my head or eyes in certain directions, focusing my attention on working out simple everyday problems, appreciating visual beauty (I can rarely enjoy looking at a painting because this feeling comes over me and keeps attacking me depending on what I look at or concentrate on), conversing with people, being creative, and a vast myriad of other things. I find it really hard to concentrate on whatever thought/action it effects. Even if I try to expose myself to it and continue on it its presence, my focus becomes uncontrollably jumpy and instinctively moves away from all the little mental 'movements' that happen to prompt more of the feeling. The concept of a reflex action comes to mind, when you touch something unanticipatedly painful (like a hot stove) and your arm leaps away before you can even think about it. It kind of feels like that - as though my mind is in a room full of objects, many which are electrified, and depending where it goes and what it touches it's liable to get shocked and instinctively flinches away from the pain. I've had lots of different OCD-related symptoms in the past, although in the past few years have made a miraculous recovery from most of them. I think this problem relates to OCD as initially when it started, the unpleasant sensation would be connected to an acute awareness of an object in my field of vision that a part of my brain felt was out of place (like a piece of fluff on my sleeve or one of my hairs hanging down in front of my eyes), and I would feel an immediate, artificial-feeling urge to move it. My attempts to ignore this stuff and concentrate on whatever I was doing resulted in the same jumpy, flinchy focus of attention. Would be really interested to know if anyone has had an experience similar to this and if so whether they've been able to do anything about it. It's been completely destructive to my life, and the conventional doctors I've seen haven't in any way helped (partially because they don't typically put much effort into listening to me). *probably an odd example, but it's the only one that would come to mind