Rdw
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Posts posted by Rdw
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Thanks for all of the input. Dr. L seems to come highly recommended. I am, however, concerned about Dasu's comment that she diagnoses traditional PANDAS and does not treat infections other than strep. My daughter's biggest flare came with a coxsackie and EBV infection, so we would want someone who readily diagnoses PANS but also knows how to treat viral infections (if needed).
Have you looked into Dr H. Jnouchi at St Peter's in NJ. She is an Immunologist, treats PANS and Panda's and the gut!! She also fights hard for IVIG w your insurance if she thinks you need it. She is NOT an LLMD but I don't know where you will get both in one doctor. She is in MOST insurance networks and her son heads up CHOPS immunologic dept. We have been with Dr T for several years. We go to both. We find him to be knowledgeable in many areas and he IS helpful with school letters and getting anti biotics if necessary. Dr T is very very busy and after your apt, it's not easy to get the office to respond promptly. I love him and his staff but we use Dr J more regularly. Good Luck!
Do you know if he is also PANs knowledgeable? CHOP is much closer to me so I would go there if I can - but I understand that CHOP is not PANDAS friendly.
Wondering if anybody has any experience with this....
in PANS / PANDAS (Lyme included)
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I love this! Also interested in a link I can review.