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JenS

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Everything posted by JenS

  1. Rick- I like the plane ride analogy. I just wish we knew what the weather was like ahead of time. Watch and wait is so hard. Tiger- Thank you for sharing. Can I ask if your sons tics are noticeable? Do other kids notice and it bother your son? I guess I'm wondering if mild tics can stay mild. Everything I read says to expect a peak severity at about 10 years old. Is that about your sons age? Also, what have you used to treat on your own? I've bought Sheila's book, along with magnesium and tic tamer (although I'm having trouble getting my son to take them). I'm so sorry for those of you that have trouble seeing a neurologist. Here in the states our pediatrician immediately referred us to one. Unfortunately the neurologist, even though he was very nice, didn't give a diagnosis and gave very little direction where to go from here. Or even when to go back. I feel like we are on our own in watching our son helplessly tic all day.
  2. Hi Rick, I have been having the EXACT same question! We recently saw the neurologist for our just turned 7 year old sons tics. He has eye blinking grunting humming neck stretching plus a few others. These all started all of a sudden. He has had an arm raising thing he's done for about two years but we never thought of it as a tic, more of his way of showing excitement and controlled vs spontaneous. When I showed a video of this to the dr combined with eye blinking he said it looked like a complex tic. Everything I read, like you, said nothing about this with being transient. The dr said it still could be and gave an example of his own son having a complex tic. I still question it and think we may be faced with TS though. One thing I read about TS vs transient was that TS will typically have a spreading of tics, for example eye blinking to neck stretching. I am just devastated and overwhelmed with the "watch and wait" period we are in now. I am brand new to this forum, so maybe some of the veteran members can weigh in here.
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