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RickButler

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Everything posted by RickButler

  1. Hi Jen Yes it's tortuous at the moment, wondering what each new day brings. I'd say my son probably has about 6 tics on the go at the moment. None of them are particularly severe, and some could be disguised as 'fidgety kid behaviour', so might not stand out. The neck and eye movements, the spinning and touching would be most recognised as tics, the throat clearing and nose pinching less so. The analogy that came to me is that it feels like we're on a long air flight somewhere and the plane is being battered by turbulence (the tics). Sometimes the turbulence is severe and scary as , the next one might be mild and not feel too bad. But we don't know how long the journey is, where we are going to, or how much turbulence we'll experience along the way.
  2. Hello all I’m new to the forum, thank you for having me. I’m Dad to a 6yr old boy in London, UK, who has developed a tic disorder over the last few weeks. As we’ve become aware of it, we’ve also realised that he has most likely ‘ticced’ mildly in the past couple of years (throat clearing for a few weeks, which went and a kind of nose pinching, which comes and goes) but we just assumed it was nervous energy I suppose. Over the last week we’ve noticed very pronounced eye rolling/darting, accompanied by neck movements and the return of the throat clearing. These episodes are definitely prompted and made worse by watching TV. There are some other movements which we suspect may be tics, but we’re finding it hard to distinguish between what are tics and what could be considered ‘regular’ 6 yr old behaviour. For example, he’s energetic and sometimes spins around, but I see spinning is also considered a complex motor tic. He also sometimes tries to touch his Mum’s boobs, but similarly I know kids of this age often ‘push the boundaries’ in this area as well (lots of kids at his school will talk about boobies and willies and see what they can get away with when playing around, for example!). However, as these occur alongside clear tics, I’m thinking it might be too much of a coincidence. I’ve been reading a few websites that set out the difference between transient tics, chronic tics and TS, as well as simple and complex motor and vocal tics. The criteria for Transient Tics as I understand it is ‘Single or multiple motor and/or vocal tics’ that are present for less than a year. What the definitions don’t seem to explain, is whether the presence of the complex tics (the spinning, the touching) are more likely to point towards TS. What I’m asking is, can complex tics be transient as well? Could the spinning and touching go away in the same way that throat clearing and blinking seems to? Just because some of the tics are complex, does it automatically mean TS? Whilst by no means seeking a diagnosis here (we’ve been referred to a specialist through our DR) I suppose, like many here, we’re clinging to the hope that his tics may be transient, or at least mild if it is TS. We know some of his tics are complex, but we don’t know if they can be transient as well, as definitions don’t seem to state this. Any advice would be appreciated. Any stories or evidence of complex transient tics would be welcomed as well! However, we know that we’re just going to have to take each day as it comes, and give our son all the love and support he needs. Thanks in advance.
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