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Everything posted by Annieo

  1. I started eating a paleo diet about five years ago. It is a commitment in that you can't rely on easy, processed foods. Last summer I started eating a ketogenic diet. Both are do-able. The benefit for me is that aches and pains I've had my entire life are gone. The sinus headaches I suffered from almost daily are gone. In other words, the inflammation I experienced for years is gone. I have not tried the diet with my PANDAS child, but because of the way I eat, she eats far more healthfully than most of her peers. Her PANDAS symptoms are currently mild, although I honestly have no idea why.
  2. Is she on steroids for pneumonia? I've known kids on high dose steroids who have gone into psychosis.
  3. I read here all the time, but it's been a very long time since I've posted. My 8 year old daughter has the same symptom as your son. Her "chewing problem," as she calls it, started last March and then went away after a couple months. It's back again, but not as bad. It's not an issue at all until it comes time to eat (she laughs and plays and is completely normal), and then it doesn't seem to be an issue every time she eats. It can go away for several days, or even months, and then come back again. I haven't figured out a pattern. How frustrating to have a pediatrician tell you there's no
  4. I posted a couple weeks ago about my daughter's symptoms and my suspicions of PANDAS/PANS. Most of her symptoms have resolved except for the feeling she gets when she uses the bathroom and then feels like she still needs to go. She's up, down, up, down on the toilet. She's been wearing either a pull-up or a mini-pad for the last month because she's afraid she's going to wet her pants or leak a little urine. She's so afraid she's going to have bathroom problems at school that she cries every morning and begs me to keep her home until she gets on the bus. (She's in first grade.) What I tho
  5. My brain has been going a million miles an hour since I first posted. Thank you for your replies. If I were a younger person I swear I would go back to school and become a neurologist. I've thought this often since my son died, and feel it even more so now. I'm only one person with some hunches and no medical degree to give me credibility, but I offer you this: 2 1/2 years ago I started following a paleo diet. I read and studied everything I could at a blog called Mark's Daily Apple. His whole push is to reduce inflammation in the body by what we eat, the emphasis being that inflammat
  6. Hi! I'm new here. My six-year-old daughter has been exhibiting symptoms that have me concerned. Here is her recent medical history: Diagnosed with strep throat 12/14/15. Treated with amoxicillin. Diagnosed with pneumonia 2/2/16. Treated with amoxicillin. Diagnosed with an ear infection 2/24/16. Treated with amoxicillin/clavulanate. On 3/4/16 things went crazy when she had severe urinary symptoms and wouldn't leave the toilet. Finally got her to go to urgent care assuming she had a bladder infection. Negative for UTI. She's been in a pull-up or wearing a pad in her underwear
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