mge_1

Hi, my son has not been diagnosed yet by a doctor but he has had both motor and verbal tics for over a year now. We haven't taken him to a doctor yet because they were very minor and didn't seem to bother him. He has recently turned 9 and over the last few months his tics have really escalated. What used to be a quiet throat clearing every few minutes has turned into an almost constant loud throat clearing that almost sounds like a bark. We spoke to a specialist on the phone and set up an appointment but cannot be seen for over a month. She told us she would most likely be referring him for CBIT after she meets with him. I'm having a hard time finding a doctor who offers CBIT where I live (northeast Pennsylvania). Does anybody have any reccomendations?

Hi and welcome
The type and dose of magnesium is important for optimum absorption and use.
 
I second the value of Epsom baths, even a foot bath is good!

Hi and welcome.
 
We do have members from the UK so am hoping one of them may see your post and be able to provide the info you need.

We had an excellent developmental pediatrician who evaluated my son. He was so very discreet in discussing the tics and was playing a "catch" game with my son while evaluating. He was great!
 
The neurologist....not so much as he said things in front of my son that he should not have and intensified his tics etc.
 
So it really does depend on the doctor.
My son was 10
Having someone close who can spend time with a younger child while you discuss details is a good idea. But the doctor does have to be able to observe and evaluate the tics, so it is a fine balance.

The company sent me a 3 day sample. During those 3 days, the difference we noticed in her tics was dramatic and more than enough to move me to place an order. Since it was around Christmas time, there was a delay in the shipment, so her usage was interrupted for a few days, and we did see the tics increasing during those days. On December 31st, we received the order, and by December 3rd we were able to go out with her again after being stuck in the house for over a month due to her loud tics.
 
To be honest, we have noticed some head jerking coming back (starting Tuesday). DD is allergic to dust/dust mite and she was exposed to it on Monday. There are other viruses going on at school as well. I am not sure but that might be the reason some tics are coming back. It is worth noting that they are less intense than they were before wearing the patches. All in all, we are very happy with the results we have seen with the patches, but still keeping our fingers crossed around here.
 
Hope this helps!

**PLEASE NOTE that this product has been discontinued since 2017 so the thread has been closed to avoid any confusion**
 
I have been lurking around these forums for about 10 months now. I just signed up now because I wanted to report our experience using Repreeve. I guess my story is no different from anybody else's here. To summarize it is a story of misery, desperation, helplessness, worry, but also determination and perseverance, driven by the deepest love for my DD (who just turned 10). She started having very mild tics when she was in kindergarten. I was sent home multiple times by many, many doctors. She started getting worse in April (2015) when she was 9. She had different tics that continually changed from one to another (head bobbing, abdominal contractions, eye blinking and rolling, neck stretching, and seizure-like tics that were very scary, etc.). We tried diet intervention according to what she tested sensitive to, heavy supplementation, and almost everything else in between, which could be material for a whole book! In November, her tics had changed from motor to vocal ones. She could no longer be under the radar at school. They were constant and SUPER loud. We were so desperate. She had to be kept home from school for an entire month, and she was starting to feel very sad and isolated. Since I have been on "research mode" for the past 10 months, I came across Sheila Rogers' post on those new patches (thank you so, so much Sheila!), and out of desperation I decided to order a sample (which by the way was free). I am very happy to report that even though my daughter's tics are not 100% gone, she is finally doing much better, and has been able to return to school.
 
I am sharing this story to encourage you guys to ask for, and use their sample. Who knows? It might bring some relief for your child, and you have absolutely nothing to lose.I really didn't expect the patches to work for my daughter because she is a PANDAS/PANS child (by the way 9 mos. on antibiotics never made the tics go away either). I also started DD on the Feingold diet on Dec 31 which I know is also helping, but the tics started to diminish while wearing the sample of the patches (5 days before starting the diet). Since she is a PANDAS/PANS kid, the patches are not obviously the only thing we are using around here. So, I do not know if the tics were meant to diminish on their own, but for me, it is too much of a coincidence the almost immediate relief my daughter enjoyed after 9 months of being completely annoyed by her tics. She says the patches are diminishing her urges to tic.
 
I just hope this post can at least help one child and his/her family out there. Good luck everyone!