Report New Here - Seeking Support and Guidance in PANS / PANDAS (Lyme included) Posted February 9, 2016 · Edited February 9, 2016 by browneyedgirl Thank you so much for your input and suggestions. Having people who are willing to "listen" to the whole story of what's going on and tell us that we are not alone is refreshing and so deeply appreciated. Thank you from the bottom of my heart. In trying to outline some semblance of a plan amid all of this uncertainty, the points that jump out at me as next steps are: investigate possibility of mold in our house, find a PANS/PANDAS-friendly doctor, and advocate for a comprehensive panel of tests. I have seen elsewhere in these Forums a reference to the "Cunningham Panel" - is that the best starting point for testing? Regarding a doctor, we are on a waiting list for Dr. Williams at MGH (but they said it would be "months and months") and have an appointment with a local naturopath in early March. We live in southern Maine and are open to traveling as needed, though I am curious to know if anyone has had success finding a doctor who is willing to do long-distance consultations? Thank you, again, to all who read and comment, and lots of love and good wishes to those of you who are also going through something so upsetting right now.