Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  1. It was an exhaustively researched...shot in the dark. You see, my husband was going down the tubes at the same time, but with totally different symptoms. The docs basically sent him home to die after his second acute pancreatitis attack in two months, fatty liver (this is a guy who never touched alcohol) constant dizziness, personality change, screaming pain in practically every muscle of his body, constant exhaustion, heart problems, high cholesterol, pre-diabetes, stalled digestive system...in short, a mess. I decided I had nothing to lose by searching for similar case studies for each of them on PubMed and then do a cross reference against my family's present symptoms and known medical histories. It took me about three months of 24/7 research to get to a "bottom line" of pernicious anemia. I had to twist my GP's arm somewhat to write a script for the shots, but for my husband at least, they worked immediately. I had to dig some more until I discovered that my son's extensive neuro damage required huge amounts of "hydroxocobalamin" and NOT the "cyanocobalamin" I was given by my GP. I wish I had found those links I posted when I was going through that . I discovered them just recently! It was shocking to realize how clueless most doctors are about the symptoms and treatment of B12 deficiency. The same applies to neurologists (who should know better) and especially psychiatrists. There's an outstanding book by Sally Pacholok R.N., and Jeffrey Stuart M.D. which you can get as an e-book on Amazon which IMHO every parent should read called, "Whats Wrong With My Child?" I must warn you however - after you read that book, you won't sleep for a week!
  2. I think the problem may have been your child's exposure to nitrous oxide which inactivates vitamin B12; causing behavioural and neurological disorders. Please have a look at these links: B12 Deficiency and Nitrous Oxide: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(05)75143-6/fulltext B12 Deficiency-Who Is At Risk? http://www.b12deficiency.info/who-is-at-risk/ Although we didn't know it at the time - after our 10 year old son's appendectomy with nitrous oxide he began to hallucinate. His mental state gradually went from bad to worse over the next 7 years until he was psychotic, demented and bedridden by age 18. What brought him back from the brink were massive injections of vitamin B12 hydroxocobalamin. He was 100% normal for the last 6 months until he caught Mediterranean Spotted Fever in November which blew him right out of the water. Sigh....
  3. 23andme /MTHFR Interpretor needed

    Hi Wombat - Please have a look at these two links. I think they may help you figure out what's going on with your son. 1. Neuropsychiatric Symptoms of B12 Deficiency 2. B12deficiency.info/who-is-at-risk All the best