We have an appointment with Dr. S in Brooklyn next week. We are really looking forward to it. She passed along her antibiotic protocol so that our school PA could continue treating our daughter until we could get to our appt with her.
She also ordered a bunch of additional labs that will be ready to discuss when we are there (which is much better than ordering when we are there and then need to come back or call to discuss). I haven't met this doctor yet and I'm already pleased.
I also have my girl on the waiting list at Mass General, but when I was on the phone with them this past week they said they no longer do IVIG. So we'll see. I'm also on the waiting list for Bock Integrative. I figured it wouldn't hurt.