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wisdom_seeker

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Topics posted by wisdom_seeker

  1.  

    How to get PEX for PANS kiddo with weird autoimmunity? (and request for sympathy)

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 0 replies
    • 1,011 views
  2.  

    CellTrend, Vibrant Wellness or other AE auto-antibody tests?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 0 replies
    • 1,114 views
  3.  

    Help please: insurance med. necessity / efficacy of IVIG for PANS / autoimmune encephalitis) 1 2

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 15 replies
    • 6,625 views
  4.  

    Appealing HD IVIG/PANS denial -- do/don't mention IgG deficiency?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 13 replies
    • 3,970 views
  5.  

    anyone had PANS from hookworm?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 3 replies
    • 1,720 views
  6.  

    babesia testing (ECP? IGeneX?) and Malarone + Alinia treatment

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 5 replies
    • 2,916 views
  7.  

    help for gas / diarrhea on Alinia (nitazoxanide)?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 2 replies
    • 1,913 views
  8.  

    Advice about chest pain post-IVIG? (+edema?)

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 1 reply
    • 1,327 views
  9.  

    IGeneX Lyme/Babesiosis test Qs (babesiosis+ w/o Lyme ?, IVIG?)

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 3 replies
    • 2,473 views
  10.  

    any reason(s) to repeat Cunningham panel?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 7 replies
    • 2,214 views
  11.  

    options for constant headache since a flare?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 8 replies
    • 1,806 views
  12.  

    Flare from a few acne boils? Or serious seborrheic dermatitis? Lotion Tx?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 1 reply
    • 1,124 views
  13.  

    Klonopin or prednisone? intense anxiety before tomorrow's school start?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 5 replies
    • 1,712 views
  14.  

    Hoekstra's and Zykov's studies of IVIG in patients with tics? +/- autoimmune markers?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 0 replies
    • 803 views
  15.  

    urgent: preventing a flare from dental extraction?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 3 replies
    • 1,348 views
  16.  

    Have you had IVIG covered under autoimmune encephalitis?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 0 replies
    • 1,217 views
  17.  

    Is frame-by-frame delayed vision a hallucination? Reason to fast-track IVIG?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 4 replies
    • 1,430 views
  18.  

    thoughts re: scary sensory integration puzzle in newly Dx son?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 10 replies
    • 3,158 views
  19.  

    help w/ Cunningham Panel and infectious test results & interpretation?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 1 reply
    • 3,060 views
  20.  

    very high serum Ammonia, (normal BUN). possible causes?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 12 replies
    • 3,482 views
  21.  

    Marcons ubiquitous and/or worth treating? references?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 14 replies
    • 19,005 views
  22.  

    feeling alone - anyone else w/ a PANS flare with every cold?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

    • 8 replies
    • 1,815 views
  23.  

    disappointed / pissed by neurologist app't -- what should I have expected?

    By wisdom_seeker, in PANS / PANDAS (Lyme included)

      
    • 12 replies
    • 2,814 views
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