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Chgomom

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Everything posted by Chgomom

  1. A William Walsh practitioner will analyze what's going on. They believe mental illnesses are due to nutrient imbalances and methylation problems, etc. This type of "getting to ht root of the problem" approach makes sense to me. Here is a list of doctors trained in this approach: http://www.walshinstitute.org/clinical-resources.html Watch his videos on mental illness and here is an article about more: http://latitudes.org/dr-william-walsh-autism-ocd-pandas-depression-methylation/
  2. My daughter didn't have high dnase titers back in 2006 when she freaked out after having strep. It may have been too long by the time we saw those docs. They didn't even believe in Pandas anyway and wanted us to seek psych help. Aholes. But 9 years later we are still battling Pandas (PANS) and her titers are through the roof with this last flare. So, yes you can have Pans/Pandas and show normal titers, possibly due to timing or possibly for some other reason.
  3. Dear frikfrak: Thought I should tell you my experience with this vaccine. First, we don't vaccine for routine purposes as we don't believe in the one size fits all mentality. When our immunologist suggested my daughter have pneumovax in 2013 I was really surprised. She has an immune deficiency. Pandas, now PANS as other illnesses can cause trouble, with the usual OCD, sensory problems, anxiety, etc. Awful. We were given a choice to try it. Within 2 or 3 weeks of the shot my daughter's sensory problems and ocd were GONE! Not an exaggeration. It was a miracle. Then in 2014 my 6 year old came down with the same symptoms but even worse ocd, tics, violent thoughts and within 2-3 weeks his problems vanished. Now this can't be a coincidence! This shot protected my daughter only for just over a year. Titers showed she was no longer protected. She proceeded to have three bouts of strep last fall and over this winter and is in a bad way with OCD, sensory, all back again. Then it was suggested that she have the Prevnar 13 which she has and is now protected again but it did NOT help her flare this time probably because she had so much strep and it caused tons of inflammation. We will keep a closer watch of her titers going forward and hope she comes out of her flare soon. In my opinion, if your child is having OCD or ticcing, etc/neuro problems I would run and get that shot. Then watch titers because it MAY not last long but what a wonderful year it was for her!!!
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