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HopeforHealth

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  1. I am in Manitoba...newly moved aswell and have yet to even get a family doctor let alone a pediatrician. As suspected, after the assessment, our son was labeled with autism. It's an easy label to slap on and I don't believe it for a second. The chronic fevers and behaviours say much more to me.
  2. My eyes are puffy from crying, I feel like my head is going to explode, I feel like I'm screaming at the top of my lungs and no ones listening. Our 4 year old son has many Pandas symptoms, but his ped is just shrugging them off, even though both of my boys ( youngest is 22 months and starting to show the same symptoms as older brother) have been swabbed and show nasal carriage of staph aureus. They both have frequent skin infections. Unfortunately I didn't link it all together until now, and ped won't treat unless there's an active infection. They both run low grade fevers all the time (which makes me think their body is trying to fight he staph, and when they get sick, their immune system goes down and they get impetigo or a boil and they usually have a few pimples on their skin all the time.) Their behaviour is pretty consistent, I don't notice flares, unless they e become so normal it's normalcy to me. Fixation on small objects, limited vocabulary(he's 4.5 and talks and has the development of a 2.5-3 yr old) clingy, withdrawn, stuttering, repetitive talk, paranoid of parking lots, grass, flies, has multiple meltdowns a day, like mother huge meltdowns, easily frustrates, trouble comprehending simple 1-2 tasks, fits of rage, does t easily transition to new tasks, displayed pupils, sore knees, lethargy, the list goes on and on. I can't get my ped to treat him or both, even though staph aureus is the culprit. I know it's risky to order meds online and to self treat, but I need to try something. SOMETHING. I believe either augmentin or keflex along with mupricin in the nose should eradicate it....I can't just let it be any longer....he's going for an assessment at a centre, but I fear they will just diagnose him with autism, adhd, or sensory processing. I'm afraid to bring up that I think it's pandas. I'm tired of talking and none truly listening or helping. I'm so defeated.
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